THE STRATEGIC DIRECTION FOR ADULT SOCIAL CARE INFORMATION

THE STRATEGIC DIRECTION FOR ADULT SOCIAL CARE INFORMATION AND INFORMATICS Presentation to The Social Services Research Group November 18 th 2010 Robert Lake Director for Social Care Information Strategy and Delivery The NHS Information Centre for Health and Social

NHS Information Centre vision and core purpose • Trusted, central, authoritative source of data and analysis about health and social care • Provide the information critical to improving quality of care and productivity • Deliver information and analysis services to support systematic improvements in care quality and efficiency, and reduce duplication

NHS IC role and functions: now • Trusted Authoritative Source -Information quality and standards -Analysis and reporting -Linking and aggregating data -National indicators and comparators -Access and presentation • Over 1, 000 Parliamentary Questions • 600 Data Collections • Distribution of information/data • 200 Key Product/Services inc: -National/Official Statistics inc. Social Care -Health/lifestyle surveys - alcohol, drugs, obesity -Population and public health -Clinical indicators • Benchmarking, -Healthcare Resource Groups for Payment by Results comparison and -Hospital Episode Statistics/NHS Comparators analysis tools - NHS Workforce -Prescribing and Quality Outcomes Framework -Estates and facilities - NHS Central register - Southport

White Paper § 2. 15 “We will ensure the right data is collected by the Health and Social Care Information Centre to enable people to exercise choice. We will seek to centralise all data returns in the Information Centre, which will have lead responsibility for data collection and assuring the data quality of those returns, working with other interested parties such as Monitor and the Care Quality Commission. We will also review data collections with a view to reducing burdens, as outlined in chapter 5. The forthcoming Health Bill will contain provisions to put the Information Centre on a firmer statutory footing, with clearer powers across organisations in the health and care system”. § 6. 7 “Placing the Health and Social Care Information Centre, currently a Special Health Authority, on a firmer statutory footing, with powers over other organisations in relation to information collection; …”

Information implications

As is… Primary Care Menta l Health A&E Independen t Sector Outpatients Administrative Retrospective Paper driven Social Care Inpatient s

Future Information Implications • Requirements and support for GP commissioning consortia; NHS Commissioning Board; Public Health Service; Regulators; Local Authorities and DPH • Information gaps – primary care, community care, outcomes, social care • Assessing quality – safety, effectiveness and patient experience • Standards – data, information and indicators • Payment by Results development and flows • Information intermediaries and www. data. gov • Information linkage • New national Information Strategy

Future Role of NHS IC (White Paper & ALB review) Standards Reducing Burden Data Collection Hub/Depository Providing Linkage & Rules about Linkage Custodian of national methodologies Data Quality, Assurance, Accreditation Access-Easy open, Syndication, Sharing of Data National & Official Statistics PQs & Information for policymakers and ministerial briefing

Landscape Parliament Dept of Public Health Other national & international agencies NHS Commissioning Board GP Commissioning Consortia NHS Information Centre NHS IC Customers Future State? ? Public Health Service NICE Patients and the public Local Government Regulators: Monitor, CQC

Adult Social Care • A Strategic Programme for Adult Social Care Information – A programme to consolidate Social Care Information requirements for Local Authorities and other stakeholders – Linking all of the Information Programmes for Social Care – Supporting change in Social Care – Linking to other care agencies Information Programmes • Aim – To provide a consistent approach to development of an Adult Care Support Record (the a. SCR) – To review and update Social Care Information Guidance – To listen and support – To undertake a “zero-based” review of data/information needs

. . supports transformation and personalisation of care services. . Outcomes Common Assessment Framework Data standards NIS NASCIS Transition Workforce Care record guarantee NHS Choices Information for public Use of PDS NHS Number Data quality Social care record Stakeholders IT Suppliers NHS CFH Information Centre ADASS Councils Department Of Health The Strategic Programme

Five Key Themes Standards Workforce National Policy Adult Care Support Record E. g. PPF Infrastructure Intelligence

Work in progress • Development of the Adult Care Support Record guidance • Social Care Standards workstream (on hold) • Engagement with the CAF projects and the Putting People First Team • The National Adult Social Care Intelligence Service (NASCIS) and Business Intelligence • TRIPS • Supporting Data Quality • Looking at information for the Public • Information Governance – supporting implementation of the SCRG

Work in Progress. . cont. • Working with: – – – ADASS S&P and ADASS IMG Suppliers Connecting for Health DCLG And others • Developing areas of work related to: - Children and Young People - Transition - Young Carers - Family records • A ‘Zero Based’ Review of Social Care Information and Intelligence Needs (implementation 2012 onwards)

Looking to the Future • Increasing involvement of the client/customer will change focus of requirements (and solutions delivered) • Focus on outcomes and personalised services will impact on measures and metrics • Challenges in commissioning new market places and new services • Increasing use (and development) of technology will bring new ways of working • Opportunity to use emerging technology to address tensions between coding and narrative • Need to find ways to engage with self funders • Personalised health budgets will bring new challenges • Creation of an a. CSR will lead to a Social Care NMDS and a Data Dictionary (leading to ‘Quality Indicators’)

Adult Care Support Record Framework Citizens Access and Control Advocacy, Carers’ access Public Knowledge bases And services Social Networks Interfaces Transition With Other Agencies Interface with Health Core Adult Care Support Record Local/community Business Intelligence CAF National Business Intelligence Monitoring and Research TRIPS

Persons Access (Portal) Summary GCSX Sharing Protocol Universal Services Record Business Control Care Support Record N 3 Persons Record Control Business Access NHS Record Persons Care Record

MAKING IT HAPPEN AT A LOCAL LEVEL • Will need national/regional support from DH, ADASS & LGA; • Suppliers must be fully engaged; • Essential to en-skill the local workforce to use up -to-date communication/recording methods • Build on experience from CAF Demonstrator Projects

MAKING IT HAPPEN…continued Essential local partnerships: • With service users and carers • With the local NHS • With the wider local authority and associated services • With the Third Sector • With “Knowledge Bases” – Advisory Services, Service Catalogues etc.

TRIPS: Proof of Concept Transforming Raw Information in Public Services Michele Chew’s Presentation to follow

SUMMARY The effectiveness of Social Care Information and Intelligence is moving forward rapidly ……. and more is yet to come!!

THANK YOU ANY QUESTIONS? Robert. lake@ic. nhs. uk