The Dementia HIT Our aim is to achieve the best quality of life for people and families affected by dementia #BHPhitconf
An estimated 21 million people in our country know a close friend or family member with dementia – that is 42% of the population. Dementia has an impact on; • People living with dementia (PLWD) • Families of PLWD • Carer of PLWD • Friends of PLWD • Society • Health services • Social care • Society • Economy #BHPhitconf
Dementia services are provided by a number of organisations. Since the HIT was formed in October 2012 we have tried to connect with as many of these as possible. #BHPhitconf
Research is important. We have a dedicated research workstream. • Clinical trials for new drugs. • Evaluation of current/new services. • Epidemiology. • Neurosurgery. • Designing assistive equipment. • Improving diagnosis through imaging techniques. • Improving support following diagnosis. • Public health. • Laboratory research. • Clinical research. • Memory assessments. • Avoiding hospital admissions. • Join Dementia Research (JDR). • First HIT publication: Attitudes toward dementia in International Psychogeriatrics. #BHPhitconf
It’s not all good…… • Change in Director’s with change in roles • Education workstream ground to a halt • Lack of protected time for Director’s • Funding (lack of) • Recruiting new staff • Lots we want to do but can’t • New Government risk reduction initiatives need to be linked in • Website – great but updating time consuming #BHPhitconf
PPI – multiple mechanisms in place: • PPI guidelines • PPI request form • PPI resource list • BEST – team literature review – involving PLWD Dementia friendly communities: • Bristol/South Gloucestershire Dementia Action Alliances • Voscur – Active together for dementia • Growing Support – therapeutic gardening • Sporting memories #BHPhitconf
2013 #BHPhitconf 2016