The Assessment of Burden of COPD (ABC)-tool Development and evaluation IPCRG 28 -05 -2016 Prof. Dr. Onno van Schayck Maastricht University Department of Familiy Medicine
Introduction COPD is more than airway obstruction Ambition: Measure experienced burden of COPD and treat accordingly Department of Familiy Medicine
Aim of this approach • Provide patients with insight • Raise awareness • Match experienced burden to treatment • Increase self management & shared decision making • Provide structure during consultation • Make a tailor made treatment plan Department of Familiy Medicine
Previously presented and awarded during IPCRG research meeting in Singapore Process of the development of the Assessment of Burden of COPD tool, 6 steps 1. Defining burden of COPD 2. Formulating requirements 3. Reality check 4. Literature review 5. Development instrument 6. Evaluating instrument Department of Familiy Medicine
The ABC scale • CCQ (clinical COPD questionnaire) – Symptoms – Functional state – Mental state • Adapted by adding questions about: – Fatigue – Emotions Department of Familiy Medicine
Department of Familiy Medicine
Additional parameters - Lung function Visual overview of integrated health status - Exacerbations - BMI - Smoking - Physical activity Treatment algorithm Department of Familiy Medicine Possibility to monitor
Evaluation of the tool Presented last year: • Psychometric properties ABC scale – Validity – Reliability New this year: • Effect evaluation – Cluster Randomised Controlled Trial • Qualitative evaluation – Experiences with the ABC tool Department of Familiy Medicine
Cluster randomised controlled trial Pragmatic study to test effectiveness on: • Disease specific quality of life – Saint George’s Respiratory Questionnaire (SGRQ) – Statistically significant more patients with a clinically relevant improvement in intervention group • Perceived quality of care - Patient Assessment of Chronic Illness Care (PACIC) – Significant better score in intervention group compared to control group Department of Familiy Medicine
Qualitative evaluation Amongst: • Healthcare providers • Patients Results: • Excellent instrument that provides insight & structure • Suggestion for improvement: “ It – Implementation in ICT the patient at that moment, with a provides an overview of systems visual representation which is not debatable and instantly clear. ” “ It takes more time, because you have to transfer data and information. ” “ It should really be integrated in the healthcare systems. ” Department of Familiy Medicine
Next step àNationwide implementation in daily care àFurther development of a tool for other chronic conditions Department of Familiy Medicine
Thank you for your attention! Department of Familiy Medicine
References • Slok AHM, In 't Veen JCCM, Chavannes NH, van der Molen T, Rutten-van Mölken MPMH, Kerstjens HAM, et al. Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD. NPJ Prim Care Respir Med. 2014; 24: 14021 • Slok AHM, In 't Veen JCCM, Chavannes NH, van der Molen T, Rutten- van Mölken MPMH, Kerstjens HAM, et al. Effectiveness of the Assessment of Burden of Chronic Obstructive Pulmonary Disease (ABC) tool: study protocol of a cluster randomised trial in primary and secondary care. BMC Pulm Med. 2014; 14: 131 • Slok AHM, Bemelmans TCH, Kotz D, van der Molen T, Kerstjens HAM, In 't Veen JCCM, Chavannes NH, Asijee GM, Rutten-van Mölken MPMH, Schayck, OCP. The Assessment of Burden of COPD (ABC) scale: a reliable and valid questionnaire. COPD: Journal Of Chronic Obstructive Pulmonary Disease. Published Online Jan 20 2016; 1 -8. Department of Familiy Medicine
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