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Social Media in Oncology ECOG-ACRIN @EAOnc #EAOnc Mike Thompson, MD, Ph. D @mtmdphd 11/13/15 Social Media in Oncology ECOG-ACRIN @EAOnc #EAOnc Mike Thompson, MD, Ph. D @mtmdphd 11/13/15 Co-PI Aurora #NCORP Medical Director, Early Phase Cancer Research Program Aurora Research Institute @Aurora_Cancer @Aurora_Health

Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & impact • Action Plan

Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & impact • Action Plan

Digital Convergence of Interests (COI) Other ASCO & NCI • @Aurora_Cancer • ASCO • Digital Convergence of Interests (COI) Other ASCO & NCI • @Aurora_Cancer • ASCO • CRAB CTC Social Media Chair – Social Media Work Group • Doximity – IT & Media Committee (‘ 10 -’ 13) – Cancer Research Comm (‘ 13 -’ 16) • Myeloma Crowd Research Initiative (MCRI) – CRF, CCF – Chair-elect, Education • #mmsm, #wmsm • Image 32 -> Citrix • MDRing App • Linked. In – Global Oncology Group (Pharma, Biotech, Medtech, Medicine & Surgery) • ASH – ASH 2015 SM session • NCI - ECOG - @EAOnc, #EAOnc - NCI MYSC - #NCORP

Thompson / SM in Medicine • Twitter, Facebook and You. Tube’s role in Arab Thompson / SM in Medicine • Twitter, Facebook and You. Tube’s role in Arab Spring (Middle East uprisings) [1/26/11, updated 7/7/13] http: //ow. ly/S 0 dio • MDACC CCOP Spring 2011 – tutored on Twitter by @fisch. MD • ASCO 2011 & Tweetup • ASCO ITM Committee • ASCO Connection Blogger • Mayo/Ragan Social Media Conference – 10/2011

Thompson / SM in Medicine • Best Doctors Webinar – “Physicians 2. 0 - Thompson / SM in Medicine • Best Doctors Webinar – “Physicians 2. 0 - How Online Collaboration Between Doctors Impacts Patient Outcomes” -- 11/17/11 • March 2, 2012 - MDACC CCOP– Keynote Speaker • ASCO 2012 Tweetup (& 2013, 2014) • ASCO 2012 Education Session • Started @EAOnc, #EAOnc

Thompson / SM in Medicine • ASCO 2014 – 2 oral sessions • Pharma Thompson / SM in Medicine • ASCO 2014 – 2 oral sessions • Pharma interest / FDA Guidance • Started @Aurora_Cancer • Most tweets of any oncologist in US (2013, W 2 O) • WON Fall 2014 Keynote speaker • Social Media increase at #ASH 14 -> #EBMT 15 • Myeloma Crowd Research Initiative (MCRI)

Thompson / SM in Medicine #ASCO 15 • Using Social Media to Learn and Thompson / SM in Medicine #ASCO 15 • Using Social Media to Learn and Communicate: It Is Not About the Tweet [5/30/15] Sat 1: 35 -1: 55 MCC S 404 #ASCO 15 http: //ow. ly/Nw. AZ 5 • #ASCO 15 Tweetup - Sat 5: 45 South Level 2. 5 Food Court - http: //twvt. us/ASCO 15 #twvt • Cancer-specific Twitter conversations among physicians in 2014 - @brianreid et al. #ASCO 15 Abstr e 17500 http: //ow. ly/MV 4 GZ • Disease-specific hashtags for online communication about cancer care - @subatomicdoc et al. #ASCO 15 Abstr 6520 http: //ow. ly/MV 516 #hcsm

Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & impact • Action Plan

Why? • “Describing social media in a manuscript can be similar to giving a Why? • “Describing social media in a manuscript can be similar to giving a didactic lecture on ‘how to ride a bike’; that is, it is far easier and more fun to do the activity than explain or read about the mechanisms. ” • Eg - type of bike [SM platforms], how a peddle works [constructing a tweet], different theories on biking [use and misuse cases], etc. Thompson MA, Majhail NS, Wood WA, Perales M-A, Chaboissier M. Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider. Current Hematologic Malignancy Reports. 2015

Why? • SM offers rapid incoming and outgoing forms of communications • Use cases: Why? • SM offers rapid incoming and outgoing forms of communications • Use cases: – Increase signal-to-noise ratio – Education networks – Crowdsourcing / crowdfunding – Collaboration – Promotion Thompson MA. Using Social Media to Learn and Communicate: It’s Not About the Tweet. In ASCO 2015 Annual Meeting Educational Book.

Social Media Use Among Physicians and Trainees: Results of a National Medical Oncology Physician Social Media Use Among Physicians and Trainees: Results of a National Medical Oncology Physician Survey Adilman et al. JOP 10/6/15 http: //ow. ly/To 4 SA Purpose: Web-based social media support physician collaboration and information sharing, but the extent to which physicians use social media for these purposes remains unknown. Methods: 9 -item survey 680 oncology physicians Results: 207 responses (30%) were received; 72% of respondents reported using social media. 93% in age 25 -34 yo & 39% in age 45 -54 yo Significant gap in social media use between younger users and mid- to late-career users. The main barrier to use was lack of free time. Conclusion: The identified gap in social media use between age cohorts may have negative implications for communication in oncology. Despite advancements in social media and efforts to integrate social media into medical education, most oncologists and trainees use social media rarely, which, along with the age-related gap in use, may have consequences for collaboration and education in oncology. Investigations to further understand barriers to social media use should be undertaken to enhance physician collaboration and knowledge sharing through social media.

The Urology Tag Ontology Project Alexander Kutikov, MD, FACS August 10, 2015 http: //www. The Urology Tag Ontology Project Alexander Kutikov, MD, FACS August 10, 2015 http: //www. symplur. com/blog/the-urology-tag-ontology-project/ Urology Tag Ontology Project: Standardizing Social Media Communication Descriptors Alexander Kutikov, Henry H. Woo and James W. Catto European Urology, October 2015 Published online: 04 October 2015 http: //www. europeanurology. com/article/S 0302 -2838(15)00942 -2/abstract/urology-tag-ontology-project-standardizing-social-media-communication-descriptors

The Urology Tag Ontology Project http: //www. symplur. com/blog/the-urology-tag-ontology-project/ • Urologists have been on The Urology Tag Ontology Project http: //www. symplur. com/blog/the-urology-tag-ontology-project/ • Urologists have been on the forefront of harnessing Social Media for professional use. • Urological Organizations and Journals have used Social Media to lower barriers for information dissemination. • Meanwhile, Social Media engagement at Urological meetings has been used to augment the experience of attendees and allow remote “attendance” for those not able to physically be present at the meetings. • Academic exchange through a formal Twitter-based Journal Club on the #urojc hashtag has enjoyed international participation. • Social Media has also been employed to assess the Media’s and the Public’s responses to news events in the Urologic clinical space, and guidelines for responsible and effective Social Media use now have been developed. • Moreover, an extremely active patient advocacy voice has been growing louder on a number of the Social Media channels

Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & impact • Action Plan

How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

Resources ASCO 15 Ed Book. Table 1 - http: //ow. ly/Nw. AZ 5 Title Resources ASCO 15 Ed Book. Table 1 - http: //ow. ly/Nw. AZ 5 Title Author(s) (Date) Link Medicine and Social Media: Why Do I Tweet? Younes A (June 15, 2009) http: //ow. ly/s. Ul. LO The Evolving Role of Healthcare Professionals Katz M (October 20, 2011) http: //ow. ly/xca. Kk Getting Started in Social Media – What to Do Before You Join Katz M (April 28, 2014) http: //ow. ly/IHi 6 q Twitter 101: Signing Up – A Tutorial for Oncologists Katz M (May 4, 2014) http: //ow. ly/xc 8 Wq Twitter 102: Account Settings – A Tutorial for Oncologists Katz M (May 5, 2014) http: //ow. ly/xc 8 MO Twitter 103: Trolls, Malware & Spam – A Tutorial for Oncologists Internet, Social Media, Privacy Regulations, and Clinical Trials Katz M (May 5, 2014) http: //ow. ly/xc 7 OA Bogler O, Thompson MA, Miller RS (June 2, 2014) Katz M (December 19, 2014) http: //ow. ly/x. Ey 8 f Social Media & Academic Oncology – Challenges and Opportunities • • • http: //slidesha. re/1 Jqa 6 B 0 Using Social Media to Learn and Communicate: It Is Not About the Tweet - ASCO 2015 Education Book - http: //ow. ly/Nw. AZ 5 ASCO Social Media: http: //www. asco. org/about-asco/social-media How Can Social Media Improve Oncology Care? – Thompson. Comm Oncol 2013 http: //ow. ly/C 4 kx. Z Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider – Thompson et al. 2015. Current Hematologic Malignancy Reports. In Press. Disease-Specific Hashtags For Online Communication About Cancer Care – Katz et al. 2015 JAMA Oncol. In Press

How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

Tweet Anatomy From Navneet Majhail, MD in Thompson et al. 2015. “Social Media and Tweet Anatomy From Navneet Majhail, MD in Thompson et al. 2015. “Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider”. In Press

From Navneet Majhail, MD in Thompson et al. 2015. “Social Media and the Practicing From Navneet Majhail, MD in Thompson et al. 2015. “Social Media and the Practicing Hematologist: Twitter 101 for the Busy Healthcare Provider”. In Press

Resources Navneet Majhail, MD @Bld. Cancer. Doc @mtmdphd @symplur I am among the converted Resources Navneet Majhail, MD @Bld. Cancer. Doc @mtmdphd @symplur I am among the converted @ #ASH 14

All You need to Know! @Bld. Cancer. Doc: “Or How I Learned to Stop All You need to Know! @Bld. Cancer. Doc: “Or How I Learned to Stop Worrying and Love Twitter" - @ASH_hematology http: //ow. ly/Kj 7 CJ #ASH 14 #bmtsm

Resources http: //www. slideshare. net/nsmajhail/twitter-ebmt • Why Do We Need Twitter? For Health Professionals Resources http: //www. slideshare. net/nsmajhail/twitter-ebmt • Why Do We Need Twitter? For Health Professionals In Oncology, Hematology & Transplant • #EBMT 15 • via @Bld. Cancer. Doc

Professional Workflow Professional Workflow "We’ve reached a point where social media is now part of the professional workflow. " via @Doctor_V @33 Charts - http: //ow. ly/HXX 06

How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

NCI / ECOG Tweeps • @the. NCI National Clinical Trials Network (NCTN) cooperative group NCI / ECOG Tweeps • @the. NCI National Clinical Trials Network (NCTN) cooperative group tweeps: • @ALLIANCE_Org, #Alliance. NCTN • @EAOnc, #EAOnc • @GOG • @nrgonc, #nrgoncology • @SWOG, #SWOGOnc • Children's Oncology Group (COG) - ? • #NCORP

NCI is on Twitter @the. NCI • @NCICancer. Ctrl • @NCIMedia • @NCIprevention • NCI is on Twitter @the. NCI • @NCICancer. Ctrl • @NCIMedia • @NCIprevention • @NCI_NCIP • @NCIBiospecimens • @NCISymptom. Mgmt • @NCIGlobal. Health • etc

People • @mtmdphd • @fischmd (ECOG, SWOG, AIM) • @Vincent. RK (ECOG chair Myeloma) People • @mtmdphd • @fischmd (ECOG, SWOG, AIM) • @Vincent. RK (ECOG chair Myeloma) • @marklewismd (SWOG) • @recnac 1 (Lee Ellis at MDACC, SWOG ) • @jrgralow (Julie Gralow) • @markaorourke (Mark O’Rourke, SWOG, NCI Sx. QOL Steering) • @Myleoma_Doc (Bob Orlowski, SWOG) • @testiscancer (Craig Nichols MD, SWOG Exec Officer) • @Montypal (Sumanta Pal, GU Med Onc at City of Hope)

How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

#EAOnc Hashtags Cancer Tag Ontology (CTO) - http: //ow. ly/LSl. Fx • ECOG-ACRIN Active #EAOnc Hashtags Cancer Tag Ontology (CTO) - http: //ow. ly/LSl. Fx • ECOG-ACRIN Active Clinical Trials… http: //ow. ly/sn. Fqf #EAOnc • Brain Cancer - #btsm http: //ow. ly/sn. FUX #EAOnc • Breast Cancer - #bcsm http: //ow. ly/sn. G 6 o #EAOnc • Early Detection, Diagnosis, and Prevention Active Trials http: //ow. ly/sn. Gkj #EAOnc • Gastrointestinal (GI) http: //ow. ly/Akw 56 #EAOnc #ancsm #crcsm #hpbcsm #pancsm #stcsm • Genitourinary (GU) Cancer - #blcsm #kcsm #tscsm http: //ow. ly/sn. Pb. Q #EAOnc • Gynecological Cancer - #gyncsm http: //ow. ly/sn. Q 2 l #EAOnc • Head and Neck Cancer - #hncsm http: //ow. ly/sn. Qer #EAOnc • Leukemia - #leusm http: //ow. ly/sn. Tw. S #EAOnc • Lymphoma - #lymsm http: //ow. ly/sn. TGD #EAOnc • Melanoma - #melsm http: //ow. ly/sn. TYL #EAOnc • Myeloma - #mmsm http: //ow. ly/o. Ugfe #EAOnc • Patient-centered Outcomes and Survivorship http: //ow. ly/sn. Uqi #EAOnc • Thoracic Cancer - #lcsm http: //ow. ly/sn. ULK #EAOnc

How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a How, How? • Twitter. com • Twitter 101, 102, 103… • Anatomy of a Tweet • Who to follow • Hashtags • Tweet chat

#mmsm Myeloma Twitter Discussion Group • Developed #mmsm (multiple myeloma social media) Twitter discussion #mmsm Myeloma Twitter Discussion Group • Developed #mmsm (multiple myeloma social media) Twitter discussion group with patient Cynthia Chmielewski (@myelomateacher). • Moderate and facilitate provider, patient, advocate discussions. • 10/15/15 - Dana Holmes (@Dana. Holmes 911) started a Facebook page to cover the #mmsm Twitter activity • https: //www. facebook. com/Multiple. Myeloma. MM SMTweet. Chat

#JACR Tweet Chat http: //www. symplur. com/healthcare-hashtags/jacr/ • The Journal of the American College #JACR Tweet Chat http: //www. symplur. com/healthcare-hashtags/jacr/ • The Journal of the American College of Radiology hosts this Tweet chat, covering issues related to health care delivery. • For more information about upcoming topics, visit www. jacr. org. • Next chat: Thursday 26 th November 09: 00 AM PST • #JACR is a healthcare tweet chat hashtag submitted by @Radiology. ACR

#JACR 5/22/14 #JACR Tweet. Chat moderator on topic of Clinical Trials and Health Care #JACR 5/22/14 #JACR Tweet. Chat moderator on topic of Clinical Trials and Health Care Social Media (#HCSM) T 1: What are the potential uses of social media to improve clinical trials? T 2: How can patients, scientists, and providers collaborate on social media? T 3: How do the FDA draft guidelines impact manufacturer use of social media? Transcript: ow. ly/AKVTj

Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & impact • Action Plan

#1 Jack West JACK WEST, Oncology Twitter Network mtmdphd This diagram represents the influencer’s #1 Jack West JACK WEST, Oncology Twitter Network mtmdphd This diagram represents the influencer’s interactions on Twitter. All followers are color-coded according to their category: Dr. Attai CONVERSES WITH: louisianagirl 91 Doctors Advocacy Patients The size of each circle represents the number of interactions that each handle has with the influencer, with prominent users labeled. In the same way the thickness of the connection quantifies the number of interactions between the two nodes. subatomoicdoc Jack. West MD Lung. Cancer. Faces JFreeman. Daily Tom. Varghese. Jr cancer. GRACE Contents are proprietary and confidential. LISTENS TO: 1

A growing online conversation about breast cancer 10000 Breast cancer authors over time – A growing online conversation about breast cancer 10000 Breast cancer authors over time – 795% growth 9000 8000 7000 Doctors (US) 6000 Doctors (Ex. US) 5000 Patients Advocacy 4000 Industry 3000 Media 2000 1000 0 Breast Cancer Authors 2009 Breast Cancer Authors 2010 Breast Cancer Authors 2011 Contents are proprietary and confidential. Breast Cancer Authors 2012 Breast Cancer Authors 2013 Breast Cancer Authors 2014

An increasingly connected community Contents are proprietary and confidential. An increasingly connected community Contents are proprietary and confidential.

ASCO Value Framework Social Network Analysis – All Conversations § Patients and advocates have ASCO Value Framework Social Network Analysis – All Conversations § Patients and advocates have been active participants in the conversation about the Value Framework. § This is a balanced conversation of doctors, patients and advocates in the “most central” list – reflective of the fact that the subject matter was presented in a very inclusive manner Most Central Handles Handle Type ASCO @ASCO Advocacy #LCSM Chat @lcsmchat Advocacy Liz Szabo @Liz. Szabo Journalist Michael Thompson @mtmdphd Doctor Deana Hendrickson @Lung. Canc er. Faces Advocacy Yousuf Zafar @yzafar Doctor Janet Freeman. Daily @JFreeman Daily Patient Matthew Katz @Subatomic Doctor Bob Tufts @Tufts. B Patient Michael Fisch Contents are proprietary and confidential. Name @Fisch. MD Doctor

ASCO Value Framework Social Network Analysis – Filtered Conversations § Even when filtering only ASCO Value Framework Social Network Analysis – Filtered Conversations § Even when filtering only to those handles mentioned at least 5 times by the health ecosystem, the most central players stayed much the same – an indication that the conversation has permeated the cancer ecosystem very effectively Most Central Handles Name Handle Type ASCO @ASCO Advocacy #LCSM Chat @lcsmchat Advocacy Michael Thompson @mtmdphd Doctor Yousuf Zafar @yzafar Doctor Janet Freeman-Daily @JFreeman. Daily Patient Deana Hendrickson @Lung. Cancer. Faces Advocacy Bob Tufts @Tufts. B Patient Michael Fisch @Fisch. MD Doctor The ASCO Post @ASCOPost Advocacy Richard Schilsky @Rschilsky Doctor Contents are proprietary and confidential. Weight: 0 Nodes: >5

Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & Outline • Who is @mtmdphd? • Why, why? • How, how? • Networks & impact • Action Plan

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Action Plan • Create account – If tentative can “protect” and just view • Action Plan • Create account – If tentative can “protect” and just view • Follow high value tweeps • Follow hashtags and learn the culture • Engage at your own pace • Learn more (eg Mayo/Ragan, Hoot. Suite) • Mentor others