PHTS Fall Meeting November 4 2012 7 35

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PHTS Fall Meeting: November 4, 2012 7. 35 PHTS Business DCC Update/QI D. Naftel Database Committee R. Gajarski (W. Mahle) Foundation Update A. Dipchand Financial Roadmap W. Mahle 8: 15 Hard to Forget: The Challenge of Desensitization in Heart Transplant Candidates Jon Kobashigawa, MD 8: 45 PHTS Scientific Committee Report W. Mahle 8: 50 Total Artificial Heart in Children Timothy Baldwin, Ph. D 9: 20 Maintenance Steroids S. Auerbach 9: 25 PVR M. Richmond (W. Mahle) 9: 30 Adjourn W. Mahle

PHTS Foundation • Established July 22, 2010 as a 501 (c) (3) non-profit organization – Located in Birmingham, Alabama • Purpose – To raise and administer funds to advance the science and treatment of children while listed for heart transplant and following heart transplantation. • Responsible for collecting the annual dues from participating centers, donations, and other income. • Subcontract UAB as the Data Coordinating Center

PHTS Foundation 2012 -2013 Board Members Officers: Anne Dipchand, MD – Chairman Bill Mahle, MD – Vice Chairman/Secretary Jacqueline Lamour, MD - Treasurer Craig Collum, MPH – Executive Director At-Large Members: James Kirklin, MD Elizabeth Blume, MD David Naftel, Ph. D Paolo Rusconi, MD Richard Kirk, MA FRCPH Melanie Everitt, MD Shelley Miyamoto, MD Elfriede Pahl, MD Heather Bastardi, NP

PHTS Foundation 2012 Highlights • • • Website Launched www. phtsfoundation. org Brochure Developed Family Education Materials in development Logo created Received $7, 000 in Educational Grants • $3, 500 from One Lamda • $3, 500 from Beckman Coulter • Received $1, 550 in donations

PHTS Foundation 2012 Highlights $40, 000 $26, 000

PHTS Foundation Annual Giving Levels and Benefits Donation Amount Category Name $5, 000 and Above Diamond $1, 000 - $4, 999 Platinum $500 - $999 Gold $250 - $499 Silver $100 - $249 Bronze $1 - $99 Supporters

PHTS Foundation Annual Giving Levels and Benefits Supporters - Name featured online under appropriate category - Letter of appreciation Bronze - Supporters plus - PHTSF Supporter Certificate Silver - Bronze plus - PHTSF Supporter Pen Gold - Silver plus - PHTSF Supporter T-Shirt Platinum - Gold plus - PHTSF Supporter Polo - PHTSF Supporter Plaque Diamond - Platinum plus - Special Recognition (at future fundraising event Fall 2013)

PHTS Foundation 2012 Friends of PHTS Supporters Aliessa Barnes Alison Amegatcher Angela Lorts Betsy Blume Caron Burch Clifford Chin Craig Collum Daniel Bernstein David Rosenthal Elfriede Pahl Jennifer Conway Joseph Rossano Juan Carlos Alejos Supporters Bronze Karen Uzark Kimberly Linn Kirk Kanter Matthew O’Connor Paolo Rusconi Richard Kirk Robert Shaddy Roy Jedeikin Shelley Miyamoto Stephen Pophal Steven Kindel Timothy Hoffman Janet Scheel Silver David Naftel Michael Kuhn William Mahle Gold Anne Dipchand Platinum Diamond Jim and Terry Kirklin

PHTS Foundation Annual Financial Report (Actual as of 9 -30 -12) Money In Balance Forward $ 14, 902. 75 Hospital Dues $ 107, 500. 00 Donations $ 1, 550. 00 Sponsorship Revenue $ 7, 000. 00 UAB Contribution $ 82, 500. 00 Total $ 213, 452. 75 Money Out Labor (Salary + Fringe) Office Supplies $ 686. 92 Computer Support $ 15, 159. 00 Postage & Shipping $ 254. 87 Meetings/Travel $ 11, 434. 34 Legal/Accounting Fees $ 7, 464. 00 Other Balance $ 3, 908. 73 Conference Calls Total $ 175, 152. 76 $ 2, 081. 03 $ 216, 141. 65 ($2, 688. 90)

PHTS Foundation • Goal: To be self-sustaining by 2015 – 2013 Budget - $227, 618 • • • 2012 Balance Forward: ($2, 688. 90) UAB Contribution: $62, 500 Required Foundation Contribution: $165, 118 – – Projected Revenue from Annual Dues: $107, 500 Projected Revenue from Sponsors: $20, 000 Projected Revenue from Donations: $20, 000 Projected Revenue from Meeting Fees: $7, 500 Total Projected Foundation Contribution $155, 000

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