Pediatric Palliative Care Waiver Outcome Data Evaluation Subcommittee
Outcome Data Evaluation Subcommittee Purpose Evaluate the impact of the Pediatric Palliative Care (PPC) Pilot Projects Identify quantitative evaluations qualitative surveys quality care indicators Meeting Dates February 1, March 15, April 18
Outcome Data Evaluation Subcommittee Committee Members Marian Dalsey, M. P. H. , M. D. , Chief, CMS Branch Pam Christiansen: Nurse Consultant, CMS Branch Jan Burrow: Nurse Consultant, CMS Branch Galynn Plummer-Thomas: Nurse Consultant, CMS Branch Xavier Castorenas: Social Work Consultant, CMS Branch Carmen Romo: Research Analyst, DHS, MCP-RDB Kathy Bissell-Benabides: Health Program Specialist, MCP-RDB
Outcome Data Evaluation Subcommittee Committee Members Ann Pomper: Hospice of Santa Cruz Christy Beaudin: Chief Quality Officer-CHLA Devon Dabbs: Children’s Hospice & Palliative Care Coalition Lori Butterworth: Children’s Hospice & Palliative Care Coalition John Golenski: George Mark Children’s House Jenny Mann Francis: U. C. Davis Medical Center Joan Tanzer: George Mark Children’s House Joyce Shefren: Pathways Home Health, Hospice & Private Duty Margaret Clausen: California Hospice Organization
Outcome Data Evaluation Subcommittee Committee Members Ann Pomper: Hospice of Santa Cruz Christy Beaudin: Chief Quality Officer-CHLA Devon Dabbs: Children’s Hospice & Palliative Care Coalition Lori Butterworth: Children’s Hospice & Palliative Care Coalition John Golenski: George Mark Children’s House Jenny Mann Francis: U. C. Davis Medical Center Joan Tanzer: George Mark Children’s House Joyce Shefren: Pathways Home Health, Hospice & Private Duty Margaret Clausen: California Hospice Organization
Outcome Data Evaluation Subcommittee Plan: Use the same evaluation tools other states are using to improve consistency of evaluations. Possible sources: • Quality of Life Scale (Peds. QL) • Warwick Child Health Morbidity Profile • Pain and Symptom Scales • School Attendance (Florida Waiver) • Impact of Family Scales (Stein and Jessup) • Family Functioning assessment • Economic Impact on Family • Provider Satisfaction Survey / NHPCO Family Satisfaction Survey
Outcome Data Evaluation Subcommittee Identify methods to access the impact of enhanced therapies such as Child Life and Art Therapy Federal Waiver Reporting Requirements # of CCS Clients potentially eligible for the Waiver # of CCS Clients offered enrollment into the pilot project # of CCS Clients who were offered enrollment and accepted Diagnoses of Clients including ICD-9 codes Paid Claims for waiver services
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