One Small Candle: Creating an SBS Advocacy Group October 5, 2008 Greg Williams, MEd Marsha Williams, LPN
As one small candle may light a thousand, so the light here kindled hath shone unto many. --William Bradford Of Plymouth Plantation
Reagan Emery Williams 1/5/04 -7/2/06
When someone you love becomes a memory, that memory becomes your priceless treasure. It also drives your passion, becomes your cause, and leads you to action. --The Shaken Baby Alliance
action
Taking Action Gathering Information Raising Funds Raising Awareness
Taking Action Gathering Information Raising Funds Raising Awareness
Gathering Information Internet Literature Professionals
Gathering Information Internet Literature Professionals
Internet • • National Center on Shaken Baby Syndrome National Shaken Baby Coalition Shaken Baby Task Force Don’t Shake a Baby. com The Shaken Baby Alliance SBS Prevention Plus Prevent Child Abuse Illinois National Center for the Prosecution of Child Abuse
Gathering Information Internet Literature Professionals
Literature • After Death Communication Hello from Heaven! by Bill & Judy Guggenheim We Are Their Heaven by Allison Du. Bois After Life by John Edward • Grief A Grief Observed by C. S. Lewis The Year of Magical Thinking by Joan Didion When the Bough Breaks by Judith R. Bernstein The Bereaved Parent by Harriet Schiff
Literature, cont. • Faith God Will Make a Way by Terry Rush Life After the Death of My Son by Dennis L. Apple A Decembered Grief by Harold Ivan Smith The Gift of Grief by Matthew D. Gewirtz
Gathering Information Internet Literature Professionals
Professionals • • • Grief Counselors Pastors Psychologists Doctors Nurses Investigators Attorneys Educators Social Workers CPAs
Professionals, cont. • Workshops Train-the-Trainer Workshop Springfield, IL 9/18/07 Prevent Child Abuse Illinois Children Living in Danger: The Risks of Paramours and Domestic Violence Bloomington, IL 6/11/08 Prevent Child Abuse Illinois
Taking Action Gathering Information Raising Funds Raising Awareness
Raising Funds • Seed Money • Memorial Fund • Wristbands
Raising Funds, cont. • Business Partnerships Provena United Samaritans Medical Center Lamar Outdoor Advertising Radio Stations WDNL WRHK WDAN WKZS Central Christian Church Danville District #118
Raising Funds, cont. • Business Partnerships, cont. Community Theatre Groups Local Merchants Chart Records Nextel Berbaum Insurance Custard Cup Education Personnel Federal Credit Union
Taking Action Gathering Information Raising Funds Raising Awareness
Raising Awareness • Website www. reagansrescuefund. com • Radio Programs WDAN Community Connection WITY Provena Healthy Living
Raising Awareness, cont. • Presentations YFRC Child Awareness Workshop DACC Early Childhood Education Conference Kiwanis and Lions Church groups
Raising Awareness, cont. • Candlelight Vigil
Raising Awareness, cont. • Billboard
Raising Awareness, cont. • Logo
Raising Awareness, cont. • Business Card
Raising Awareness, cont. • Radio Public Service Announcements
Raising Awareness, cont. • Magazine Articles “Partners in Prevention” One Life Winter/Spring 08 “Beary Good News” Teddy Bear Review June 2008
Raising Awareness, cont. • Boyd’s Bears
Raising Awareness, cont. • School District
Raising Awareness, cont. • School District, cont. q. Illinois House Resolution 228—adopted 6/13/07 ~SBS curriculum implemented in Illinois middle and high school health classes ~Reagan’s Rescue pushed for immediate implementation in Vermilion and Champaign County schools
Raising Awareness, cont.
Raising Awareness, cont. • School District, cont. q. Reagan Williams Memorial Track Invitational q. Builder’s Club at North Ridge Middle School q. Key Club at Danville High School q. Channel One PSAs
Raising Awareness, cont. • School District, cont. q. Reagan’s Rescue Scholarship
Raising Awareness, cont. • School District, cont. q. Library Donations Danville High School ~Silenced Angels: The Medical, Legal, and Social Aspects of Shaken Baby Syndrome by James R. Peinkofer ~Grandma’s Baby: A True Story of One Family’s Struggle with Shaken Baby Syndrome by Karen Wise, R. N.
Raising Awareness, cont. • School District, cont. q Library Donations Edison Elementary School ~The Fall of Freddie the Leaf by Leo Buscaglia
Legal Responsibilities • • Incorporation NFP Status Taxes Bookkeeping
Blessings • Festival of Trees David S. Palmer Arena Nov. 2007 “Angels on Earth”
Blessings, cont. • Reagan Williams Playroom Your Family Resource Connection Danville, IL Dedicated 1/29/08
Blessings, cont.
Blessings, cont.
Blessings, cont
Blessings, cont.
Blessings, cont. Illinois State Proclamation SBS Awareness Week Signed 3/1/08 Gov. Rod Blagojevich
It matters not how long the star did shine but the brightness with which it shown.
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