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National Mortality Data Set Kenneth D. Kochanek Mortality Statistics Branch Division of Vital Statistics National Mortality Data Set Kenneth D. Kochanek Mortality Statistics Branch Division of Vital Statistics National Center for Health Statistics Data Users Conference July 12 -14, 2004

Presentation Outline • • • National Vital Statistics System Nature of the System – Presentation Outline • • • National Vital Statistics System Nature of the System – Decentralized Role of the States Role of NCHS Role of the World Health Organization (WHO) Mortality Data • • Multiple Cause-of-Death Data • Entity Axis Applications • Record Axis Applications • • Underlying Cause-of-Death Data • Advantages of Underlying Cause-of-Death Data • Limitations of Underlying Cause-of-Death Data Electronic Death Certificate Data Dissemination

Nature of the National Vital Statistics System • • The National Vital Statistics System Nature of the National Vital Statistics System • • The National Vital Statistics System is decentralized • Statistics that are produced by NCHS are based on information obtained from certificates filed in the States where events occur • Cooperation between NCHS and the States is governed by contracts of agreement There are no laws at the national level requiring the collection of vital statistics data SOURCE: CDC/NCHS

Role of States • • • State laws govern filing of certificates and reports Role of States • • • State laws govern filing of certificates and reports States produce their own certificates and reports States code the information Vital Statistics Cooperative Program (VSCP) Availability of certificates and reports SOURCE: CDC/NCHS

Role of NCHS • To compile and publish national and subnational vital statistics • Role of NCHS • To compile and publish national and subnational vital statistics • To promote coherence and uniformity of the data collected through the VSCP SOURCE: CDC/NCHS

Promote Data Quality • Model law • Handbooks • Training and instruction manuals • Promote Data Quality • Model law • Handbooks • Training and instruction manuals • Various publications • Standard certificates and reports • Quality control SOURCE: CDC/NCHS

Mortality Data • Mortality statistics are based on information from the approximately 2. 3 Mortality Data • Mortality statistics are based on information from the approximately 2. 3 million death certificates filed each year in the 50 States and the District of Columbia • The Death Certificate serves two very different purposes

Death Certificate • A legal document regarding the facts and circumstances of a death Death Certificate • A legal document regarding the facts and circumstances of a death • A statistical resource providing information on characteristics of the decedent SOURCE: CDC/NCHS

Role of World Health Organization • Promoting standardization of mortality statistics through the International Role of World Health Organization • Promoting standardization of mortality statistics through the International Classification of Diseases (ICD) • Compiling international mortality statistics SOURCE: CDC/NCHS

Role of ICD • Provides standard definitions • Prescribes the format for cause-of-death information Role of ICD • Provides standard definitions • Prescribes the format for cause-of-death information on the death certificate • Describes how death certificate should be completed • Provides rules for selecting the underlying cause of death SOURCE: CDC/NCHS

Underlying Cause of Death • “The disease or injury which initiated the chain of Underlying Cause of Death • “The disease or injury which initiated the chain of morbid events leading directly to death, or • The circumstances of the accident or violence that produced the fatal injury. ” SOURCE: CDC/NCHS

Computer Software • ACME: Automated Classification of Medical Entities • TRANSAX: Translation of Axes Computer Software • ACME: Automated Classification of Medical Entities • TRANSAX: Translation of Axes • MICAR: Mortality Medical Indexing, Classification and Retrieval • Super. MICAR SOURCE: CDC/NCHS

Advantages of Underlying Cause of Death • Simple and one dimensional • Conceptually easy Advantages of Underlying Cause of Death • Simple and one dimensional • Conceptually easy to understand • Well-accepted measure of mortality • Useful to public health officials SOURCE: CDC/NCHS

Limitations of Underlying Cause of Death • Only one disease selected • Arbitrary selection Limitations of Underlying Cause of Death • Only one disease selected • Arbitrary selection • Excludes information • Certifier mistakes • Only as good as the information on the death certificate SOURCE: CDC/NCHS

Multiple Cause of Death • Portrays the number of deaths in which a given Multiple Cause of Death • Portrays the number of deaths in which a given condition is a significant factor contributing to death, if reported • Portrays the Interaction of diseases • Contains two fields: • Record Axis • Entity Axis SOURCE: CDC/NCHS

Entity Axis Applications • Relationships among conditions • Accuracy of certification reporting • Testing Entity Axis Applications • Relationships among conditions • Accuracy of certification reporting • Testing traditional assumptions of underlying cause selection SOURCE: CDC/NCHS

Record Axis Applications • Classifiable in manner like the underlying cause of death • Record Axis Applications • Classifiable in manner like the underlying cause of death • Best representation of ICD codes SOURCE: CDC/NCHS

Electronic Death Certificate (EDC) • Certifier and funeral director data entry in electronic form, Electronic Death Certificate (EDC) • Certifier and funeral director data entry in electronic form, including • prompts • tutorials • querying for incomplete or uninformative terms • querying for implausible cause of death sequences SOURCE: CDC/NCHS

Data Dissemination • • • Preliminary Report Final Report Monthly National Vital Statistics Reports Data Dissemination • • • Preliminary Report Final Report Monthly National Vital Statistics Reports Special reports Public use micro data – CD-ROM Confidentiality SOURCE: CDC/NCHS

CD-ROM’s • Mortality Public Use Data Sets • ASCII Dump CD-ROM’s 1968 -2001 • CD-ROM’s • Mortality Public Use Data Sets • ASCII Dump CD-ROM’s 1968 -2001 • SETS CD-ROM’s 1991 -98 • Compressed Mortality File (CMF)

Mortality Data from the National Vital Statistics System website: http: //www. cdc. gov/nchs/about/ major/dvs/mortdata. Mortality Data from the National Vital Statistics System website: http: //www. cdc. gov/nchs/about/ major/dvs/mortdata. htm