Memory Day Missouri State Capitol Facts to

Memory Day Missouri State Capitol

Facts to Know National • 5+ million Americans are living with Alzheimer’s • Every 67 seconds, another person is added • 6 th leading cause of death Missouri • 110, 000 people have Alzheimer’s • 130, 000 by 2025 • $4 billion, the value of unpaid care by family caregivers 2

Memory Day Agenda 11: 00 Buses arrive at the Capitol 11: 00 -2: 00 Group visits to legislators 12: 00 -1: 30 Box lunches, 3 rd floor rotunda 2: 00 – 2: 20 Memory Day Ceremony, 1 st floor rotunda 2: 20 Group photo on south Capitol steps 2: 30 -2: 45 Departure 3

2: 15 Photo Session South Capitol Steps 4

Missouri Legislature Republicans have a “super majority” in the Senate and the House 5

Group Visits Groups are organized by Senate district • Everyone will be assigned to a group with a group coordinator • Entire group makes the Senate visit • Small groups may make visits to Representatives, depending on the size of your group For each visit, there should be a designated spokesperson(s) • Constituent • Individual with a compelling personal story 6

Visiting With Your Legislator • State your name, where you are from, and that you are a constituent • You are speaking today on behalf of the • Missouri Coalition of Alzheimer’s Association Chapters • 110, 000 individuals in Missouri with Alzheimer’s and their families • Share your personal story • Make the pitch • 3 minutes • 3 points • 1 page summary • Close by asking for support • Follow up with a thank you 7

1 st Public Policy Priority Fully fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families $450, 000 in the budget for the Department of Health and Senior Services (HB 10) 8

$450, 000 for Alzheimer’s grants that provide respite care assistance What: • Alzheimer’s grants provide critical respite care assistance to help families care for a loved one at home • 70% of people with Alzheimer’s are living at home because of the support families provide • The value of unpaid support provided by these Missouri families is more than $4 billion • Families cannot do it alone 9

Respite offers choice and flexibility to Missouri families caring for a loved one at home Who: • Families receive up to $500 annually • Person with dementia must live with the caregiver seeking respite assistance • Families select the care that best meets their needs • Respite: Home care, adult day services, short-term respite at a residential care facility • Supplies: Incontinence, nutritional, medical equipment • Available across the state • Priority to those in greatest need 10

Alzheimer’s is a long and costly disease and caregivers need support Why: • 110, 000 people in Missouri have Alzheimer’s • 6 th leading cause of death and has no cure • Disease trajectory is lengthy, spanning 8 to 20 years. Individuals will require steadily increasing assistance • Caregiving is stressful – physically, mentally, and financially 11

Respite assistance could save the state millions Why: • Missouri spends more than $158 million* annually to care for people with Alzheimer’s in nursing homes • 99% of families surveyed stated that respite assistance helped them keep their loved one at home, delaying the move to a nursing home • Delaying nursing home placement for just one month for 800 respite families could save the state more than $2 million in Medicaid nursing home costs *SFY 2011, Missouri Alzheimer’s State Plan Task Force, Interim Report 12

How this works 800 $147 30 60% average nursing home Medicaid cost / days delayed in moving to a nursing home of nursing home residents on Medicaid 13 respite program families $2. 1 millio n savings

Memory Day Ask Fully fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families $450, 000 in the budget for the Department of Health and Senior Services (HB 10) Three committees must approve this funding: • House Appropriations Committee for Health, Mental Health and Social Services • House Budget Committee • Senate Appropriations 14

House Appropriations-Health, Mental Health, and Social Services Representative Party District Marsha Haefner (Chair) Rep. 095: STL David Wood (Vice Chair) Rep. 058: Morgan, Moniteau, Miller Michael Butler Dem. 079: STL Courtney Allen Curtis Dem. 073: STL Keith Frederick Rep. 121: Phelps, Pulaski Jeanne Kirkton Dem. 091: STL Bonnaye Mims Dem. 027: Kansas City, Jackson Jim Neely Rep. 008: Caldwell, Ray, Clay, Clinton Holly Rehder Rep. 148: Scott, Mississippi Becky Ruth Rep. 114: Jefferson John Wiemann Rep. 103: St. Charles 15

House Budget Committee Representative Party District Tom Flanigan (Chair) Rep. 163: Jasper Scott Fitzpatrick (Vice Chair) Rep. 158: Lawrence, Stone, Barry Sue Allen Rep. 100: STL Justin Alferman Rep. 061: Osage, Franklin, Gasconade Marsha Haefner Rep. 095: STL Kurt Bahr Rep. 102: St. Charles Cloria Brown Rep. 094: STL Eric Burlison Rep. 133: Greene Kathie Conway Rep. 104: St. Charles Lincoln Hough Rep. 135: Greene Caleb Jones Rep. 050: Cole, Cooper, Moniteau, Boone Nick King Rep. 017: Clay Shelley Keeney Rep. 145: Perry, Madison, Bollinger 16

Representative Party District Jeanne Kirkton Dem. 091: STL Jeremy La. Faver Dem. 025: Kansas City Donna Lichtenegger Rep. 146: Cape Girardeau Kirk Mathews Rep. 110: STL, Franklin Gail Mc. Cann Beatty Dem. 026: Kansas City Kevin Mc. Manus Dem. 036: Kansas City Jeffrey Messenger Rep. 130: Greene Craig Redmon Rep. 004: Knox, Adair, Schuyler, Scotland, Clark Karla May Dem 084: STL City Genise Montecillo Dem. 092: STL Caleb Rowden Rep. 044: Randolph, Boone Robert Ross Rep. 142: Texas, Howell, Phelps, Pulaski Kathryn Swan Rep. 147: Cape Girardeau Stephen Webber Dem. 046: Boone John Rizzo Dem. 019: Kansas City, Jackson 17

Senate Appropriations Senator Party District Kurt Schafer (Chair) Rep. 019: Boone, Randolph Ryan Silvey (Vice-Chair) Rep. 017: Clay County Dan Brown Rep. 016: Phelps, Pulaski Mike Kehoe Rep. 006: Cole, Gasconade, Maries, Miller, Moniteau, Morgan and Osage Mike Parson Rep. 028: Benton Cedar, Dallas, Hickory, Laclede, Pettis, Polk and St. Clair David Pearce Rep. 021: Caldwell, Carroll, Howard, Johnson, Lafayette, Livingston, Ray and Saline David Sater Rep. 029: Barry, Lawrence, Mc. Donald, Stone and Taney Rob Schaaf Rep. 034: Buchanan, Platte S. Kiki Curls Dem. 009: Jackson Jamilah Nasheed Dem. 005: St. Louis City Gina Walsh Dem. 013: St. Louis County 18

2 nd Public Policy Priority Protect seniors against financial exploitation Senior Savings Protection Act SB 244 and HB 636 19

Senior Savings Protection Act What: • Provides financial industry professionals with a path to voluntarily reach out to state agencies and family members when they suspect their senior clients are being exploited • Allows them to refuse disbursements for up to 10 days so the state may review the situation • Protects the growing senior population to ensure more able to fully utilize savings they have built throughout a lifetime 20

Missouri’s senior population is rapidly growing Who: • Including the growing number of people with Alzheimer’s who may be vulnerable to financial exploitation • 110, 000 people in Missouri have Alzheimer’s. That number will grow to 130, 000 by 2025 • Nationally, it is estimated that seniors loss $2. 6 billion annually because of financial exploitation 21

SB 244 and HB 636 give professionals the tools they need to help protect senior investors Why: • Financial professionals are often the first to identify suspected financial exploitation • Currently, they can not risk potential liability for holding suspect disbursements or breaching industry privacy obligations by reaching out to family members or the state. This bill addresses these concerns • Bill supporters include leaders in the financial industry and other senior advocacy groups • If passed, it will make Missouri a national leader in senior investor protection laws 22

Memory Day Ask Protect seniors against financial exploitation Senior Savings Protection Act HB 636 and SB 244 HB 636 sponsored by Representative Barnes (Jefferson City) • House Banking Committee SB 244 sponsored by Senator Schmitt (Kirkwood) • This bill has not been assigned to a committee 23

House Banking Committee Representative Party District Sandy Crawford, Chair Rep. 129 Laclede, Dallas Jeff Pogue, Vice Chair Rep. 143: Oregon, Shannon, Reynolds, Dent Jack Bondon Rep. 56: KC, Cass, Bates Wanda Brown Dem. 57: Cass, Benton, Bates, Henry Don Gosen Rep. 101: STL Alan Green Dem. 067: STL Dave Hinson Rep. 119: Franklin, Washington Bill Kidd Rep. 020: Jackson Mary Nichols Dem. 072: STL Bill Otto Dem. 070: STL Craig Redmon Rep. 004: Knox, Adair, Schuyler, Scotland, Clark, Lewis Noel Shull Rep. 016: KC 24

Questions 25

Alzheimer’s Service Grants R: I serve on the Budget Committee. Remind me, what is the appropriations request and what is it used for? AA: We are asking for $450, 000 for Alzheimer’s grants that provide respite care assistance. These critically important funds support Missouri families caring for a loved one at home that has Alzheimer’s or a related dementia. The request is in the budget for Health and Senior Services (HB 10). 26

Alzheimer’s Service Grants R: You mentioned that this respite program can save the state money. Please explain that to me. AA: Missouri spends more than $150 million annually to care for people with Alzheimer’s in nursing homes. 99% of the families in this program stated in a recent survey that respite assistance helped delay nursing home placement. If nursing placement was delayed by just one month for the people in the respite program, the state could save more than $2 million in Medicaid nursing home costs. 27

Alzheimer’s Service Grants R: Do you have suggests about where the state can get this money? AA: Representative, as a volunteer with the Alzheimer’s Association I do not know the answer. I do know about the heroic sacrifices families make caring for their loved ones at home and the $4 billion value of that uncompensated care. Additionally, when respite helps families keep their loved ones at home for a longer period of time, the state saves dollars paying for Medicaid nursing home care. 28

Alzheimer’s Service Grants R: I don’t serve on the budget committee so I can’t help you with this request. AA: Representative, we ask that you talk with your colleagues that serve on the appropriations and budget committees. Let them know how important this program is to the families in your district. 29

Alzheimer’s Service Grants R: I know the Governor withheld respite funding for this year. What is the status of that funding? AA: We are extremely pleased that the funding has been released and will provide respite assistance to the more than 350 families currently on the waiting list. I’d like to talk about funding for next year. Can we count on your support to ensure funding is in the budget for this critically important program? 30

Senior Savings Protection Act R: I am not familiar with the Senior Savings Protection Act. What specifically does the legislation do? AA: When a financial industry professional suspects that their senior client is being exploited, this legislation gives them the tools to slow down the process and investigate. It allows them to refuse disbursements for up to 10 days so the state may review the situation. 31

Senior Savings Protection Act R: So why is the Alzheimer’s Association supporting this? AA: 110, 000 people in Missouri have Alzheimer’s. That number will grow to 130, 000 by 2025. We want to ensure that protections are in place for individuals that may be vulnerable to financial exploitation including those with Alzheimer’s and related dementias. 32

Senior Savings Protection Act R: What other groups are supporting this legislation? AA: Leaders in the financial industry including Wells Fargo, Edward Jones, and SIFMA, the national trade association. Additionally, the Area Agencies on Aging and Silver Hair Legislature have made this a priority. 33

Chapter Services R: At times, I get calls from constituents who are struggling with the care of a family member with dementia. What support services are available? AA: The Alzheimer’s Association offers a comprehensive array of services including our Helpline that provides support to families 24/7/365. If you have a constituent in need, know that we are always available to offer support. 34

What we are asking for: Fully Fund Alzheimer’s grants that provide Respite Care Assistance to Missouri families $450, 000 in the Budget for Department of Health and Senior Services (HB 10) Protect seniors against financial exploitation Support Senior Savings Protection Act SB 244 (Schmitt) and HB 636 (Barnes) HB 636 and SB 244 35

Together, we are making a difference! Thank you! 36