Juliet Chenery-Robson The Visualisation of the Invisible Illness M. E. A Transition from MA to Practice Led Ph. D Research
Emilia’s kingdom 2
Illness is the night-side of life, a more onerous citizenship. Everyone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick. Susan Sontag, Illness as Metaphor 3
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Alienation 5
Unpredictable Patterns Northern Gallery for Contemporary Art MA Degree Show 2008 6
Unpredictable Patterns 7
A Diagnosis of Exclusion Durham Art Gallery 2010 8
Ph. D Research Question: The visualisation of the invisible illness ME (Myalgic Encephalopathy) through the production of contemporary photographic practice in collaboration with sufferers, carers and medical researchers.
Many psychiatrists currently refuse to accept the serious physical nature of M. E. and state that it is “merely a faulty illness belief”, or “somatoform disorder”. (June 14 2006 Invest in ME press release) “The treatment (or lack of it) of ME sufferers in the UK is a national scandal. ” (Professor Malcolm Hooper, University of Sunderland) 10
M. E. Research MRI Scanner, Newcastle General Hospital 11
Lucy’s kingdom 12
Amelia’s kingdom 13
Ben and Ryan’s kingdom 14
Trai’s kingdom 15
Three Stages of Mimesis (an interpretation) Mimesis 1: The realisation that meaning can be derived from sufferers experiences of living with M. E. Mimesis 2: The creation of something representable with form (photographs) from raw experience, making it visible & understandable. Mimesis 3: The outcome of the creation (photographs) being observed & interpreted via exhibition, publication or website. 16
Morgan’s kingdom 17
M. E. Research Northumbria University 18
Historical References JEAN-MARTIN CHARCOT HUGH WELCH DIAMOND 19
Contemporary References 1 JO SPENCE ROSY MARTIN 20
Contemporary References 2 DEBORAH PADFIELD JOHN DARWELL 21
M. E. Research Tilt Tables, Royal Victoria Infirmary 22
M. E. Research Skin fluorescence, Freeman Hospital 23
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Empty office exhibitions: Life with Art GEMINI HOUSE PETERLEE OPEN EVENING: 13 TH MAY WARWICK HOUSE NEWCASTLE OPEN EVENING: 7 TH JUNE 26
William Osler, Canadian Physician 27 Variability is the law of life and as no two faces are the same, so no two bodies are alike, and no two individuals react alike and behave alike under the abnormal conditions which we know as disease. Medicine is a science of uncertainty and an art of probability.
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