It doesn t have to be like this Fiona

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It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference 2 nd March 2008 Fiona O’Malley Return to Diet 1

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference 2 nd March 2008 Non-PKU sibling Joe O’Malley 2

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Introduction 2 nd March 2008 • How has PKU affected me… – 7 year age gap – Random “Here Taste this…” 3

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Tipping Point 2 nd March 2008 • Autumn 2005 – Returned from University – What’s wrong with Fiona? 4

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Tipping Point 2 nd March 2008 • Autumn 2005 – Lethargic – Irritable – Lack of concentration – Off diet 5

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Turning Point 2 nd March 2008 – Adult PKU study day November 2005 – “It doesn't have to be like this” 6

It doesn’t have to be like this Winter 2005 Fiona & Joe O’Malley NSPKU 35 th Annual Conference 2 nd March 2008 • Taking Stock – One year to the next PKU study day – Who do we want to be? – What can be done in a year? 7

It doesn’t have to be like this Spring 2006 Fiona & Joe O’Malley NSPKU 35 th Annual Conference 2 nd March 2008 • Researched • Gained Knowledge • Tailored a plan 8

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Evaluating our progress 2 nd March 2008 9

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Evaluating our progress 2 nd March 2008 Buy 1 get 1 free… Wedding in Ireland… Weekend in Paris… 10

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Spring 2007 2 nd March 2008 • Goals Achieved – Phe Levels below UK recommended adult range – Lost almost 3 stone (19 Kg) – Brighter, Confident & Happy 11

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Side Effects 2 nd March 2008 – Got to know who Fiona is… – Better understanding of PKU – Lost 6 stone (38 Kg) – Personal Total Weight loss 10 stone (63 Kg) 12

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 13

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 14

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 15

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 16

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 17

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 18

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 19

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 20

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference Looking Back 2 nd March 2008 21

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference So what now? 2 nd March 2008 – Lift 18 metric tonnes per week (average)… – Run Hill sprints 3 mornings per week – Pyramid Sprint Row 15 miles per week – Krav Maga – Israeli Commando Fighting System – “No overhangs except what nature intended…” 22

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference 60 Seconds… 2 nd March 2008 • Fill the unforgiving minute with sixty seconds' worth of distance run 23

Click here to view 1 minute video - 36 MB 24

It doesn’t have to be like this Thank You Fiona & Joe O’Malley NSPKU 35 th Annual Conference 2 nd March 2008 • For listening • To Eleanor Weetch & the NSPKU Team • To everyone who helped us to get where we are today. 25

It doesn’t have to be like this Fiona & Joe O’Malley NSPKU 35 th Annual Conference 2 nd March 2008 It doesn’t have to be like this… 26

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