ISN is a unique medical society with

ISN is a unique medical society – with a humanitarian mission

ISN Mission: Advancing the diagnosis, treatment and prevention of kidney diseases in low, middle and high resource countries

ISN Mission – Raise public awareness – Connect professionals – Support research – Provide nephrology education and training worldwide – Reduce the frequency and impact of kidney diseases and their associated conditions

EDUCATION

Bone and the Kidney Copenhagen 20 -23 Sept 2012 Traditional Educational materials and events

ISN Programs Fellowships Sister Renal Centers Educational Ambassadors Clinical Research (Research & Prevention) Continuing Medical Education (CME) Goal: Sustainable Program Development

Integrated structure of ISN global outreach progr ISN CME Program • Up to 50 two-day CME courses run worldwide in Developing countries • Support for travel of 3 international opinion leaders to each CME ISN Fellowship Program • 2 -12 months fellowship for an individual to visit a developed Nephrology centre • Range of support, U$3, 000 - $25, 000 ISN Sister Renal Centre Program • 6 year training link between a developed and emerging nephrology centre • Stepwise funding: Years 1 -2 U$3000; Years 3 -4 U$26, 000, Years 56 U$34, 000 • Bilateral multi-disciplinary training exchanges ISN R&P Program • Grants to support local research projects in developing centres • Grants range from $10, 000 – 15, 000 ISN Educational Ambassadors Program • Support a leading expert to spend 1 -4 weeks in a developing centre

ISN Programs 42 Fellowships 37 Sister Renal Centers 12 Educational Ambassadors 5 Clinical Research 49 Continuing Medical Education (CME) Programs $2 million USD/year 95% of ISN’s operating margin

Regional ISN Programs ISN Regional Committees Goal: To develop ISN Programs effectively in each region

ISN Programs Supported by many affiliations and partnerships: National & Regional Nephrology Societies Academic institutions Individual donors Industry

The ISN Family 10, 000 members in 131 countries ISN has 73 affiliated societies: national or regional nephrology societies

Expanded Educational Programs

ISN Education www. theisn. org A new multimedia education portal: Launched 2012 Lectures Webinars Improved connectivity of events

ISN International PARTNERS IPNA International Pediatric Nephrology Association ISPD International Society for Peritoneal Dialysis ISH International Society for Hypertension TTS The Transplantation Society KDIGO Kidney Disease: Improving Global Outcomes IFKF International Federation of Kidney Foundations MSF Médecins sans Frontières

RENAL DISASTER RELIEF TASK FORCE ISN partnership with Médecins sans Frontières

ISN SEEKS ‘OFFICIAL RELATIONS’ WITH WORLD HEALTH ORGANISATION • ‘Official relations’ were achieved in 2012 • This follows some years of ISN working increasingly closely with WHO • . . and should increase the influence of the voice for kidney disease

ISN ADVOCACY, PUBLIC POLICY World Kidney Day

INCREASING RECOGNITION OF THE IMPORTANCE OF CKD IN GOVERNMENT HEALTH POLICY • More and more governments are putting CKD into their NCD policy development • In many countries, ISN members are advising governments about CKD policy • An ISN Task Force is developing a policy template to assist this process

Enhanced focus on special programs Children and young adults continue • Reducing morbidity and mortality from to Acutein emerging world as a direct die Renal Failure in the developing world result of acute kidney injury which in many cases is a preventable and • Saving condition treatableyoung lives with few if any long-term health consequences • Chronic Kidney Disease 19

Saving Young Lives in Africa and Asia Funded by Foundation Recanati-Kaplan A collaborative project (2012 -2016) between : - ISN (J. Feehally) - International Pediatric Nephrology Association (IPNA) (B. Smoyer) - International Society for Peritoneal Dialysis (ISPD) (F. Finkelstein) - Sustainable Kidney Care Foundation (SKCF) (M. Carter) -Euro. PD (S. Davies) The project: Development of specialized centers for care of AKI including facilities for acute PD (in Africa and Asia) Development of models for delivery of early preventive care in local healthcare settings in the catchment area of these specialist centers Development of triage mechanisms to allow identification of those needing specialized care with transport enabling rapid transfer 20

Acute Kidney Injury contributes to mortality rate worldwide 1. 7 million death/year 300 thousands/year High-income countries: 1. 4 Low- and middle-income countries: million/year* *Calculations made assuming a similar death rate as in high-income countries 21 Lewington et al. , Kidney Int, 2013

The human right case by the ISN for Acute Renal Failure: 0 by 25 No one should die of untreated acute renal failure even the in poorest part of Africa, Asia and South America by 2025 22

ISN “ 0 by 25 “ initiative • Better understanding: • Document the incidence and etiology of ARF in selected regions in the developing world • Better strategies for care and education: – Develop strategies to prevent, diagnose and initiate treatment for ARF • the training of health workers in remote areas, • development of necessary reliable, affordable and cost-effective laboratory/technical resources and telecommunication assistance both at local health centers and regional treatment centers • Better prevention: – Develop strategies to reduce the incidence of ARF for selected causes and related mortality with particular emphasis on peritoneal dialytic support 23