Inspiring the Development of Cancer Support Groups in

Inspiring the Development of Cancer Support Groups in the Community Rose Thompson Director of BME Cancer Communities www. bmecancer. com 0115 9348482 service@bmecancer. com

BME We prefer to say Be Me (Put Yourself in My Place) = Black and Minority Ethnic Less visible ethnic groups often excluded

BME Cancer Communities A small developing social enterprise with a community focus on BME and low income household communities affected by cancer. (CIC registered as Cancer Communities). Based in Nottingham, we think nationally and act locally. What do we do ? • Raise BME and low income household cancer awareness in the community and amongst health professionals via events and outreach and training. • Empower cancer service users to make accurate , up to date informed choices • Assist the development of community based effective support services. • Develop BME cancer information resources and supportive community based networks

Family Cancer Experience Lost mother and twin sister to breast cancer. (Both under 50) Younger sister survives, 10 years after mastectomy and treatment Aunt (mother’s sister). Breast cancer and dementia 2012

First report on Ethnicity and Cancer Published in 2009 Cancer Incidence and Survival By Major Ethnic Group, England, 2002 -2006 The National Cancer Intelligence Network (NCIN) in collaboration with: Cancer Research UK Cancer Survival Group. London School of Hygiene & Tropical Medicine

Supporting The Shamrock Club The Irish Centre Nottingham

Chinese Cancer Awareness Day Nottingham http: //www. nottinghamchinese. org. uk/ http: //www. cnhlc. org. uk/

Gaps in appropriate Support services Support is important and valued, especially if the support comes from someone who has a similar experience and cultural heritage.

Support via BME organisations and BME Cancer Survivors Important Some of the most effective initiatives to support BME cancer patients/carers are based in the community BME voluntary sector organisations are generally under funded, and increasingly being forced to end community services.

BME Cancer Communities Survey

PROSTATE CANCER AND BLACK MEN • Black African Caribbean men 2. 5 more likely to be diagnosed with prostate cancer (5 yrs earlier than expected) • Some Black African men (not all), are also at increased risk, PROCESS = Prostate Cancer in Ethnic Sub Groups initial study (Limited to Bristol and London)

Friends and Bredrins

Elijah Israel Prostate Cancer Ambassador

FRIENDS AND BREDRINS FIRST FUNDRAISER – BARBEQUE JUNE 2013

Prostate Cancer. A Widows Story (The Hugh Dwyer Inspirational Foundation) Hugh Back A Yard Making wicker furniture Hugh and Cynthia

Negative men’s stories and death rates led to a new type of BME report

Hear Me Now The Uncomfortable Reality of Prostate Cancer in black African Caribbean men www. bmecancer. com

David Lammy MP (Tottenham) Speaking at the Hear Me Now launch

‘Hear Me Now’ Report Launch House of Commons 2013 Report driven by higher death rates Black men 30% more likely to die from prostate cancer than White British men

Dr Steve Knights - GP support Windmill Practice Nottingham

Hear Me Now One Year On http: //bmecancer. com/index. php/hmnreports/download-hear-me-nowreports

Hear Me Now Round Table Westminster Sept 2014

Support groups start with one passionate person supported by others with a shared passion. Lloyd Ferron BMECC Shiatsu massage expert Wayne Marston - FAB

Thank You Rose Thompson BME cancer. communities Tel. 0115 9348482 Email. rose. thompson@bmecancer. com Website. www. bmecancer. com