House of Hope Brasov, Romania Dr. Delia Birtar, Paediatric Project Coordinator
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Beginnings First steps § April 1992, Hospice 'Casa Sperantei' Brasov was founded as a Romanian. British charity -home care team for adults. § March 1996 The first PPC for children from Romania started as a home care service with a nurse and a doctor.
A big development was in 2002 when we opened the new building
House of Hope Brasov, Romania Adults complex services Children PC department q Home-care q In-patients unit with 6 beds q Day center q Rehabilitation service q Out-patient clinic q Hospital consultations q Study center
Paediatric Team • Doctor: 1 • Nurses – 5 in-patient – 2 for HC • • Nurse-assistants: 5 Social workers: 2 Psychologist: 1/2 Play therapist: 1 Physiotherapist: 1 Driver Spiritual coordinator: 4 h/week Volunteers
Patient eligibility criteria • Age: 0 -18 years • Diseases: all the diseases who fall in the 4 ACT categories • Life expectancy: not likely to reach adulthood • Referred by: – Physicians –most of them from the children hospital, but also from family doctors – Community, children‘s institutions – Family self referral
Patients 2011 House of Hope Brasov, Romania • N=142 • Age groups – 0 -4 – 5 -11 – 12 -18 – >18 y 39 45 37 21 • Death: 2011 - 7 death • Place of death: a study over 12 years showed that about 80% patients died at home
Funding From totally supported from U. K. to mainly self supported 2011 • External funding: Hospices of Hope U. K. 12% in 2011 • Local funding 88% in 2011 • grants • Public funds: health insurance, social subvention from the town hall • Fund raising events, campaigns and stands
Funding From totally supported from U. K. to mainly self supported The local funds grew up dramatically after 2006 • Dedicated fund-raising team • Campaigns not only events • 2% from taxes (the fiscal code allows the employees to redirect 2% of the taxes to NGOs) • The good reputation built in time • The public awareness's built in time • The volunteers department
PPC Services in Romania Hospice of Hope 12
The national role of Hospice “Casa Sperantei ü To offer a valid and complex model of care for a neglected category of patients ü To set and maintain standards of care in cooperation with Health and Child Protection Authorities ü To provide theoretical and practical teaching in palliative care ü To promote the concept of palliative care for children on a national level through education and lobby ü To act as a national resource and training center in palliative care
The international outreach Education, tutoring, organizational help: • Moldova • Bosnia • Serbia • Albania • Greece • Bulgaria • Georgia, Tajikistan etc,
Organizational issues PPC for children – independent service or part of an adults-children service? ? ? Advantages Disadvantages Stronger lobby, advocacy Common management Common administrative expenses Larger community recognition Learning from adults experience Facilities for education, research … Children exposed to media Not always similar problem Distributions of funds Confusion of the scope of care Overlapping the experience Priorities for adults research …
“ When the time has come for an idea nothing can stop it” When God likes someone’s ways He will make Even his enemies into his friends
Thank you www. hospice. ro 17
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