Georgia’s Newborn Surveillance & Tracking System (NSTS) Akilah Heggs, MA, CCC-A Susan Bertonaschi, M. S. Elisa Stamey, R. N. Georgia Division of Public Health Family Health Branch Atlanta, Georgia
Faculty Disclosure Information In the past 12 months, I have not had a significant financial interest or other relationship with the manufacturer(s) of the product(s) or provider(s) that will be discussed in my presentation. This presentation will not include discussion of pharmaceuticals or devices that have not been approved by the FDA or if you will be discussing unapproved or “off-label” uses of pharmaceuticals or devices.
NSTS is … • An integrated Web-based system for the collection, management, and analysis of newborn, child health and case management information with secure access by a range of approved private and public health care providers in Georgia. Office of Information Technology
NSTS is … (con’t) • Encompasses: – Children 1 st – Universal Newborn Hearing Screening and Intervention (UNHSI), – Genetics Services Program, – Georgia Birth Defects Reporting and Information System (GBDRIS) and – Georgia’s Childhood Lead Poisoning and Prevention Program – Expandable to include other health conditions Office of Information Technology
NSTS Vision Newborn Surveillance and Tracking System (NSTS) is envisioned as the information backbone for Children 1 st that will serve as the catalyst for ensuring that all children and families receive the appropriate screenings, referrals, and follow-up services to which they are entitled. The ultimate goal is to create a health profile for every child within the public health system with access to this profile for clinicians, interventionists, and public health officials. Office of Information Technology
NSTS Users and Roles • Hospitals – 98 birthing hospitals • Newborn hearing screening • Children 1 st risk factors • Metabolic screening • Public Health – State Level Epidemiologists and Program Managers • Surveillance and program management – District Level Program Managers and County Health Department Staff • 18 districts & 159 counties • Identification, monitoring, follow up, referrals • Primary Care Physicians – Pediatricians and Family Practitioners • Identification, monitoring • Audiologists • Identification, intervention Office of Information Technology
Collaborative Effort § Georgia Division of Public Health § § § § § Epidemiology Branch, DPH Family Health Branch, DPH Vital Records Branch, DPH Georgia Immunization Registry, DPH Georgia Public Health Laboratory, DPH District and County Health Departments Hospitals Private Providers Office of Information Technology, DHR Georgia Technology Authority Office of Information Technology
Children 1 st • Single Point of Entry – Birth to age 5 – Infants and children at risk for poor health and developmental outcomes • Core Functions – – – Identification/Screening Assessment Linkage/Referral Monitoring Tracking Newborn Hearing Screening Office of Information Technology
Universal Newborn Hearing Screening and Intervention Program (UNHSI) • State Infrastructure – Public Health – Hospitals – Private Providers • District Infrastructure – Referrals – Follow-up – Intervention Office of Information Technology
Project Goals Population Based Surveillance § Integrating metabolic screening data and electronic birth data with NSTS to create a population-based system Identification and Tracking of At Risk Children through: § Children 1 st Surveillance and Intervention of: § § Newborn and Child Hearing Loss Blood Lead Levels Birth Defects Genetic and Metabolic Conditions Office of Information Technology
Project Goals Data Integration, Deduplication and Matching § § § Newborn screening results Birth and fetal death records from EBRS Automated hospital hearing screening test results Laboratory reports of blood lead test results Electronic birth defect records abstracted from hospital medical records Office of Information Technology
Project Objectives Implementation in Series of Releases based on Public Health Needs § Year 1: § Children 1 st and Newborn Hearing Functionality (UNHSI) § Integration of EBRS and Hearing Screening Data § Users: District Health Departments (Children 1 st and UNHSI Coordinators), State Staff, Hospitals, Audiologists, Primary Care Providers Office of Information Technology
Project Objectives Implementation in Series of Releases based on Public Health Needs § Year 2: § Genetic and Metabolic Conditions, integration with GPHL Newborn Screening Data § Birth Defects Functionality (GBDRIS) § Users: State Staff; Hospitals; Genetics Services Program and Contracting Agencies (Emory, Grady, Medical College of Georgia), Children 1 st Office of Information Technology
Project Objectives Implementation in Series of Releases based on Public Health Needs § Year 3: § Georgia Lead Poisoning Prevention Program (GLPPP) functionality including Geospatial analysis. § Users: State Staff, Regional Lead Coordinators, Children 1 st Staff. Office of Information Technology
Project Status • April 2005 -- Limelight Technologies awarded contract • May-August 2005 -- Gap Analysis and Requirements Gathering Completed • Sep–November 2005 – System Design Completed – Pilot Sites Recruited • • Nov 2005 -March 2006 – System Build April–June 2006 – System Testing July-August 2006– Pilot Go Live anticipated ~ September 2006. Office of Information Technology
NSTS at the Local Level • Current district data collection and tracking process • Engaging potential users and community partners • How NSTS will improve the tracking and monitoring process Office of Information Technology
Pilot Selection Process • How pilot participants were selected • Process for engaging pilot participants • Pilot Activities Office of Information Technology
NSTS Pilot Sites • 2 District Health Departments – Fulton – Dalton • 2 Hospitals • 2 Audiology Clinics • 2 Pediatric Practices Office of Information Technology
NSTS Strengths & Values • • • Seamless integration of NSTS and EBRS in Year 1 And with Newborn Screening Reports in Year 2 Hearing Screening Data transfer from Hospital equipment Probabilistic Data Matching and Deduplication Electronic submission of all Children 1 st Forms Work Center – To-Do list Automated queues to streamline the work load – Follow-Up or interval Letters • • • Child Health Status Page Tracking of children in foster care Preserving history of important demographic data and up-to-date data Automated geo-coding of child’s addresses for Lead module Standard and Customizable Reports Data Export Office of Information Technology
Sample Work Center Office of Information Technology
Sample Child Health Status Page Office of Information Technology
Sample Child Demographic History Office of Information Technology
Probabilistic Data Matching and Deduplication Office of Information Technology
Questions? Contact Information: Siobhan Gilchrist (404) 657 -4657 smgilchrist@dhr. state. ga. us Office of Information Technology
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