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Database Update Dr Rob Hollingsworth Mark Foster Award Winners UK IT Industry Awards – UK Public Sector Project of the Year E-Health Insider Awards – Excellence in Major Healthcare IT Development
Thank you for your support of the database!
Escalating use of Immunoglobulin treatment
Services provided by the database • Management of product shortages • Support for Ig procurement and monitoring • Safety and recall management • Information for guidelines review • Prescribing audit • Commissioning support
Commissioning Support Automated Reporting • Reporting provided for each commissioning region • Commissioners receive monthly reports of recorded usage • Usage reported by Trust and Product (year to date and most recent month) • Compared against Trust invoices
Database Status Update • Almost 53, 000 patients registered with 62, 000 treatment episodes • Multiple specialities and 130+ conditions • 700, 000 separate infusion entries • 160 Trust’s submitting data (inc. Scottish and NI Centres) • Almost 22 million grams of immunoglobulin recorded • 1, 600 Database users
Increasing Annual Usage of Immunoglobulin Usage (g) • Overall usage increase line graph
Top 10 Diagnostic Conditions (Usage) • Top 20 Conditions (usage)
Top 20 Trusts (Usage)
Dashboards • Co-ordinating changes • Improving the measures • Removing redundant measures • Updating the database to facilitate production
Imminent Dashboard Changes Remove PID 09 - Adverse events documented on the national database with recorded infusions IVIG 09 - Adverse Events Documented Reword PID 01 Patients with immunoglobulin trough levels recorded and documented on the national database during the current reporting financial year Numerator : Number of patients in denominator who have immunoglobulin trough Levels recorded and documented on the national database during the current reporting financial year Private patients To be excluded from all dashboard measures
Collaboration with UK PIN Registry • Poster at UKPIN conference • Produce a joint report • Combine the strengths of both databases
Immunoglobulin Database Version Releases Version 5, 5. 1, 5. 2, 5. 3 • New servers • Higher bandwidth hosting location • User interface • Flexibility with dates • Care Department • Links from reports direct to patient record • Dosage entry added to follow-up screen • Improved automated navigation • Ability to search for a diagnosis • Dashboard updates • Ability to delete treatment episodes • Trusts now able to add new users and new forgotten password function • Peformance increases e. g. automated infusion upload • Mark treatment episodes as paediatric / adult care
Immunoglobulin Database Version Releases Version 5. 4 in Pilot • Ability to exclude patients from dashboards inc. private patients • Flag fields relevant to dashboards including guidance • Updated dashboard measures • Reports to highlight excluded patients with direct link to exclusion screen • Update dashboard guide • Enable deletion / editing of dosage entries • Enable quick entry of a dosage review where there is no dose change • Removed question about dosage change • Ability to continue editing or adding to completed treatment episodes • Highlight completed treatment episodes when searching • Add to options to specify patient as an overseas patient or other • In follow-up add option in treatment status for “Treatment not started” • Header now includes indication colour and long/short term indicator
Database Updates Roadmap • Ongoing dashboard reporting improvements • Data quality assistant tool • New dosage recording method • Pilot of Ig pre-authorisation functionality • Ability to attach documents to treatment episodes • Patient home therapy monitoring - Haemtrack
Haemtrack Patient Home Therapy Information System • Successfully universally adopted for the Haemophilia service • Over 700, 000 treatments entered by patients • Allows clinicians to review in real-time patient home therapy entries • Mobile Apps for i. Phone and Android • Support for all products with ability to scan product entries • Integrated to the Immunoglobulin Database
Haemtrack Home Therapy
Public website • New domain name : www. igd. nhs. uk • New layout and review of information • Feedback welcome!
Automated Data Uploads JAC Ascribe Limited progress incorporating directly into pharmacy systems 31 Hospitals using the spreadsheet infusion upload 12 Hospitals currently using the follow-up upload 33 Hospitals currently using the Ig request upload Possible upload for home deliveries and outcomes?
Conclusion The database and the work of Trusts to provide information to it, continues to be crucial to successfully manage the many challenges of NHS Immunoglobulin therapy May the force be with you!