Continence Promotion Committee CPC Program Diane Newman —

Continence Promotion Committee (CPC) Program Diane Newman - Chair ICS – 2005 - Montreal

Current Initiatives for Increasing Continence Awareness Wednesday, August 31 13: 00 to 14: 00 Palais des congres de Montreal

Organizations 2004 – 2005 47 (38) organizations in 33 (29) countries AUSTRALIA AUSTRIA BELGIUM BRAZIL CANADA COLOMBIA CZECH REPUBLIC DENMARK GERMANY (2) CHINA (Hong Kong) HUNGARY INDIA INDONESIA ISRAEL ITALY (2) JAPAN KOREA MALAYSIA MEXICO (New) NETHERLANDS (3) NEW ZEALAND NORWAY PHILIPPINES POLAND SINGAPORE SLOVAKIA (New) SPAIN (New) SWEDEN SWITZERLAND TAIWAN THAILAND UNITED KINGDOM (5) UNITED STATES (4)

Diane Newman -Introduction • • PROGRAM OVERVIEW “Global Patient Advocacy Group” Canadian Continence Foundation Activities Frankie Bates, RN NCA OVERVIEW Overactive Bladder European Patient Association Network • Dr. Judith Wardle • Director The Continence Foundation, Great Britain

CPC Issues • Global Initiatives • Overactive Bladder European Patient Association Network • Patient Advocacy Group • Evolving into “Continence: : Bladder Health Campaign”

2 Global Initiatives

Background on Overactive Bladder European Patient Association Network • Global initiative that focuses on supporting patient advocacy groups currently working in the area of overactive bladder management, in order to help increase awareness, education, and proper treatment of overactive bladder • Francois Haab (France), Chairman • Participation from CPC associations in 5 -7 EU countries • Sponsor-Pfizer

Participating European Patient Association Network • Femmes pours Toujours • Asociacion Nacional de (France) – Françoise Nicole Kremer • German Continence Foundation (Germany) – Karl-Peter Jünemann, MD • Tribunal for Patients’ Rights – Cittadinanzattiva (Italy) – Stefano Inglese Ostomizados e Incontinentes (ANOI) (Spain) – Carmen Chacel Tuya • Sinoba (Sweden) – Maud Ankardal • Incontact (Action on Incontinence) (United Kingdom) – Linda Crumlin • Continence Foundation (United Kingdom) – Judith Wardle, Ph. D

Background on Patient Advocacy Group • Global initiative that focuses on supporting advocacy groups to implement wide reaching awareness campaigns targeting policy makers, healthcare professionals. • Focus is SUI • Provides guidance for networking and information sharing, developing partnerships with healthcare professionals and supporting awareness, education, and proper treatment. • Developed a position paper, conducting surveys • David Fonda (Australia), Chairman • Participation from CPC associations in 11 countries (EU, Mexico & Canada) • Sponsor-Eli Lilly & Boehringer Ingelheim

Patient Advocacy Group - Global Achievement U-Control, Belgium

CPC Issues • Donations to CPC • CPC Collaboration with World Federation of Incontinence Patients • ICS New Zealand 2006 • Annual Meeting Allotted Time • Workshop • Committee Meeting

CPC Issues • Website • Newsletter – ICS Publications Cmte • 2006 “Continence: Bladder Health Campaign” • World Continence Day • Plan – Public Forum @ 2007 ICS Rotterdam, 2008 ICI Paris • Presenters: » Professionals (report of key advances) » CPC group