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Brain Injury Association of America: Why Should You Care? Brain Injury Association of America: Why Should You Care?

30 years ago, 50% of all people with brain injury died at the scene; 30 years ago, 50% of all people with brain injury died at the scene; death rate is now 22%

TBI in the United States 50, 000 Deaths At least 1. 4 million TBIs TBI in the United States 50, 000 Deaths At least 1. 4 million TBIs occur in the United States each year. * 235, 000 Hospitalizations 1, 111, 000 Emergency Department Visits ? ? ? Receiving Other Medical Care or No Care * Average annual numbers, 1995 -2001 From the 2004 CDC Report: TBI in the United States: ED Visits, Hospitalizations, and Deaths

TBI in the United States The number reported with TBI underestimates the magnitude of TBI in the United States The number reported with TBI underestimates the magnitude of the problem because the following are not included: – TBIs treated by private physicians – Individuals who did not seek medical care

TBI in the US by Cause From CDC: Average annual percents, 1995 -2001; ED TBI in the US by Cause From CDC: Average annual percents, 1995 -2001; ED visits, hospitalizations, and deaths combined

Comparative Incidence Brain Injury Association of America, 2005 Comparative Incidence Brain Injury Association of America, 2005

BIAA is fighting for parity in public VR Rehabilitation Services Administration • • • BIAA is fighting for parity in public VR Rehabilitation Services Administration • • • Use “Innovation & Expansion” funds for TBI Lobby for Specialty Counselors Implement Cognitive Accommodations Reward Successful Closures Fight “Not VR Ready” Mindset

The TBI Act… A lesson in perseverance ©NHIF 1994 The TBI Act… A lesson in perseverance ©NHIF 1994

TBI Act Reauthorization • 5 -year Authorization • CDC – Surveillance & Registry linkage TBI Act Reauthorization • 5 -year Authorization • CDC – Surveillance & Registry linkage • State Grants – American Indian Consortium added • P&A Grants – Data Coordination • HRSA – Bi-annual Report to Congress & National Grants of Significance (Projects leading to Policy Development, Service Access, State Capacity Building, Service Quality & Evaluation & Emerging Needs)

TBI Act Appropriations Requests CDC - $8. 715 million (up from $5. 715 in TBI Act Appropriations Requests CDC - $8. 715 million (up from $5. 715 in FY 05) HRSA States - $15. 193 million (up from $6. 375 in FY 05) HRSA P&A - $6 million (up from $3 million in FY 05) Legislative Action Center www. biausa. org

TBI Mortality in Oregon - (1989 -1998) Source: DEPARTMENT OF HEALTH AND HUMAN SERVICES TBI Mortality in Oregon - (1989 -1998) Source: DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention National Center for Injury Prevention and Control Legend: At or above 90 th National percentile At or above the 75 th percentile but less than the 90 th National percentile

Traumatic Brain Injury in Washington (1989 -1998) Source: DEPARTMENT OF HEALTH AND HUMAN SERVICES Traumatic Brain Injury in Washington (1989 -1998) Source: DEPARTMENT OF HEALTH AND HUMAN SERVICES Centers for Disease Control and Prevention National Center for Injury Prevention and Control Legend: At or above 90 th National percentile At or above the 75 th percentile but less than the 90 th National percentile

Soldiers with TBI • Previous Wars: 20% of all military casualties sustained a brain Soldiers with TBI • Previous Wars: 20% of all military casualties sustained a brain injury • The rate of blast brain injuries in soldiers returning from Iraq and Afghanistan appears to be as high as 50% http: //icasualties. org/oif/

Terri Schiavo Terri Schiavo

State & Federal Budgets “Red Ink Rising” The Economist State & Federal Budgets “Red Ink Rising” The Economist

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Definitions * * No Response TBI ABI Both Definitions * * No Response TBI ABI Both

Cross Disability or Brain Disorder Cross Disability or Brain Disorder

BIAA - Prevention/Awareness • Safe World Outdoor Advertising Campaign • Protect the Stuff You BIAA - Prevention/Awareness • Safe World Outdoor Advertising Campaign • Protect the Stuff You Care About video PSA • Brain Injury Awareness Month Kits • Living with Brain Injury Brochures • Honorary Spokespersons • Wristbands & Decals Photo courtesy of Suzanne Doswell

BIAA - Research • • NIDRR Assistive Technology Project NIDRR TBI Model Systems Abstracts BIAA - Research • • NIDRR Assistive Technology Project NIDRR TBI Model Systems Abstracts & Inserts NIDRR Self Employment Project Double Funding for TBI Model Systems to $15 million • Achieved Congressional Direction for Clinical Pharmacology Trials Network • Elevate NCMRR to full Institute status at NIH

BIAA - Education/Information • 1. 8 million website visitors, 12, 000 I&R calls & BIAA - Education/Information • 1. 8 million website visitors, 12, 000 I&R calls & 100, 000 TBI Challenge! Newsletters per year • 1, 100 AACBIS certificants; 400 new applicants per year • 250 Registrants Rehabilitation of Traumatic Brain Injury: The State of the Art • Brain Injury Business Practices College (December 2005) • Caregivers Conference (March 2006)

BIAA - Advocacy • TBI Act Reauthorization and Appropriations • Social Security Administration “Mental BIAA - Advocacy • TBI Act Reauthorization and Appropriations • Social Security Administration “Mental Impairment Listings” • Rehabilitation Services Administration • Cognitive Rehabilitation

BIA - State Advocacy • Increased Appropriations for Waiver Services in Iowa, New Hampshire, BIA - State Advocacy • Increased Appropriations for Waiver Services in Iowa, New Hampshire, and Mississippi • Waiver authority in New Mexico and Montana • Medicaid Buy-in (TTWWI) in Connecticut • State Plan Services in Rhode Island • More $ for Michigan No Fault • Mental Health Services in Kentucky • Community Based Options in Vermont

BIA - State Advocacy • Advisory Councils in Maryland Ohio • Designated Licensing Agency BIA - State Advocacy • Advisory Councils in Maryland Ohio • Designated Licensing Agency in Virginia • Shaken Baby Legislation in Illinois • Bike Helmets in New Hampshire • Special Education for TBI in Oregon • Consumer Choice in Colorado • Expanded services in Utah • Residential options in Connecticut

BIA-Oregon Services: • Information about brain injury, services, health care and prevention, including in-service BIA-Oregon Services: • Information about brain injury, services, health care and prevention, including in-service educational programs • Assistance to support groups for survivors and their families • Policy advocacy for programs and services • Resource sharing for medical professionals and service providers • Annual conference • Quarterly newsletter

BIA-Oregon • There are over 70, 000 Oregonians who live with disabilities from traumatic BIA-Oregon • There are over 70, 000 Oregonians who live with disabilities from traumatic brain injury. • Help by joining the Brain Injury Association of Oregon's volunteer network. • Give: – Time – Talent – Treasure • Are you a member?

Together, we are the only nationwide organization representing 5. 3 million individuals with brain Together, we are the only nationwide organization representing 5. 3 million individuals with brain injury, their families and the researchers, clinicians and professionals who provide treatment and care.

Better Together, we are a $15+ million advocacy network that answers 100, 000 individual Better Together, we are a $15+ million advocacy network that answers 100, 000 individual requests for help each year. Together, we have a 25 -year legacy of state and federal policy achievement that generates research, services and support.

Better Together Better Together

Thank You! Geoffrey M. Lauer National Director for Affiliate Relations Brain Injury Association of Thank You! Geoffrey M. Lauer National Director for Affiliate Relations Brain Injury Association of America 8201 Greensboro Drive, Suite 611 Mc. Lean, VA 22102 319 -621 -7078 gmlauer@biausa. org

The 5 Building Blocks for State Brain Injury Services 1) 2) 3) 4) 5) The 5 Building Blocks for State Brain Injury Services 1) 2) 3) 4) 5) A Strong State Association A legislatively appointed State Advisory Council on Brain Injury A TBI Trust Fund or other State Dedicated Funding A Medicaid HCBS Waiver for TBI A TBI Registry