Annual Spring Meeting April 26 2016 7 00

Annual Spring Meeting April 26, 2016 7: 00 pm Welcome M. Everitt 7: 05 pm Steering Committee Update M. Everitt 7: 15 pm DCC Update D. Naftel/ S. Lenderman 7: 30 pm Web Based Data Entry Update D. Naftel/ S. Lenderman 7: 40 pm Database Committee Update M. Richmond 7: 55 pm MATE Project Overview C. Almond 8: 00 pm Break 8: 15 pm Pedimacs Report D. Rosenthal 8: 25 pm Foundation Update R. Gajarski 8: 35 pm Scientific Committee Update D. Hsu 8: 45 pm Scientific Committee Sponsored Workshop D. Hsu 9: 35 pm Limited Data Set Request SOP M. Everitt 9: 40 pm New Business 10: 00 pm Adjourn M. Everitt

Committee Members 2016 -2017 Database Committee Marc Richmond, MD Nancy Mc. Donald, NP James Kirklin, MD Jacqueline Lamour Joshua Sparks Philip Thrush Katie Simpson Chair Non Physician Rep. UAB Representative Member at Large

Status Details at Listing/Relisting/Transplant V In hospital m Out of hospital m No m Yes m Unknown m No 7 b. Did patient require continuous m Yes mechanical ventilation? m Unknown m No 8. Does patient require continuous V Yes inotropes? m Unknown m Dose Unknown 8 a. Inotropes Dose m High Dose or Multiple IV m Single Low Dose m No 9. Has ductal dependent pulmonary or V Yes systemic circulation, with ductal patency maintained by stent of prostaglandin infusion m Unknown m No 10. Was patient listed for ABO Incompatible m Yes m Unknown 11. Was patient on a VAD or ECMO at time of m VAD m ECMO listing (or tx or relisting)? m Not on support at time of listing 12. Was patient listed for DCD (Donation after m No m Yes Cardiac Death) organ? m Unknown m This is not current practice at our center 7. Was patient in or out of hospital at time of listing (or tx or relisting? 7 a. Was patient in the ICU at time of listing (or tx or relisting)

Data Mapping Infection Organisms

Data Mapping Infection Organisms Current: Free Text Box Coming Soon: Check all that apply Mapping of over 450 organisms entered 1993 -present

Data Mapping Medications at Annual Follow Up 2010 Data Collection Form 2015 Data Collection Form

Data Mapping Medications at Annual Follow Up Current: Free Text Box Coming Soon: Check all that apply Mapping of over 2, 500 medications entered 1993 -present

Other, specify • There are several dozen places in the database where “other, specify” is an available option. • The Database Committee is beginning to review what has been entered for these “specify” fields for data cleaning. • Once all fields have been reviewed, the Committee will have a quarterly review of all data entered for data cleaning and to determine if additional answer choices need to be added to questions.