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ADHD and the impact on Family Val Ivens Richmond Support ADHD Coach Joint Working ADHD and the impact on Family Val Ivens Richmond Support ADHD Coach Joint Working Party parents & Local Authority Sheila Keeling Development Manager & Founder of Add+up Mother Service Provider

This presentation aims to cover • The impact on families • Does research back This presentation aims to cover • The impact on families • Does research back this up? • What should we be doing to address this? • Why isn’t it happening Let’s start by looking at the real human cost on families…

Let’s start at the beginning…. “Give it time” “She’s needs to get into a Let’s start at the beginning…. “Give it time” “She’s needs to get into a routine” “She’s tired” “She’s hungry” “She’s hot” “She’s cold” © 2014 Add+up www. addup. co. uk

“It’s because he’s the eldest” “It’s because he’s the youngest” “It’s because he’s the “It’s because he’s the eldest” “It’s because he’s the youngest” “It’s because he’s the middle child” And the classic…. “It’s because he’s a boy” © 2014 Add+up www. addup. co. uk

Or better still…. Just give him a good hiding, it never hurt me when Or better still…. Just give him a good hiding, it never hurt me when I was his age!! © 2014 Add+up www. addup. co. uk

But nothing works!!!!! © 2014 Add+up www. addup. co. uk But nothing works!!!!! © 2014 Add+up www. addup. co. uk

Something is not right Will anyone agree with us? © 2014 Add+up www. addup. Something is not right Will anyone agree with us? © 2014 Add+up www. addup. co. uk

Family Unit begins to suffer • Mum worn out • Dad comes home to Family Unit begins to suffer • Mum worn out • Dad comes home to a stressed house • Siblings feel left out © 2014 Add+up www. addup. co. uk

Many families break down completely Sibling Rivalry Divorce Rates © 2014 Add+up www. addup. Many families break down completely Sibling Rivalry Divorce Rates © 2014 Add+up www. addup. co. uk

“I think there may be a problem with your child” Hooray!! © 2014 Add+up “I think there may be a problem with your child” Hooray!! © 2014 Add+up www. addup. co. uk

My child has ADHD! Relief!!!! I am not a neurotic mother X I can My child has ADHD! Relief!!!! I am not a neurotic mother X I can manage my children I am a good person An answer! © 2014 Add+up www. addup. co. uk

Then it really hits you ? ? ? Questions Guilt Emotions ? Why my Then it really hits you ? ? ? Questions Guilt Emotions ? Why my child? What did I do wrong? ? © 2014 Add+up ? www. addup. co. uk

Everyone has an opinion about ADHD It’s naughty kid syndrome It’s bad parenting I Everyone has an opinion about ADHD It’s naughty kid syndrome It’s bad parenting I don’t believe it exists It’s just an excuse for bad behaviour © 2014 Add+up www. addup. co. uk

Then comes the anger I knew there was something wrong all along! I kept Then comes the anger I knew there was something wrong all along! I kept telling people, why did no-one listen to me? © 2014 Add+up www. addup. co. uk

So, where do I go from here? ture employment prospects? Will they ever leave So, where do I go from here? ture employment prospects? Will they ever leave home!! © 2014 Add+up www. addup. co. uk What about main stream school? Medication? Side effects?

The voluntary sector is invaluable to families Listening to parents Reducing anxiety and fears The voluntary sector is invaluable to families Listening to parents Reducing anxiety and fears © 2014 Add+up www. addup. co. uk

Empowering Parents Access Confidence Information Services Knowledge © 2014 Add+up Self Esteem www. addup. Empowering Parents Access Confidence Information Services Knowledge © 2014 Add+up Self Esteem www. addup. co. uk

Look at the Positives Out of the negative world… And into the positive © Look at the Positives Out of the negative world… And into the positive © 2014 Add+up www. addup. co. uk

Different Management Michael Phelps Supreme Olympian Diagnosed with ADHD aged 9 © 2014 Add+up Different Management Michael Phelps Supreme Olympian Diagnosed with ADHD aged 9 © 2014 Add+up www. addup. co. uk

Other Role Models Winston Churchill © 2014 Add+up www. addup. co. uk Other Role Models Winston Churchill © 2014 Add+up www. addup. co. uk

Other Role Models Lee Evans © 2014 Add+up www. addup. co. uk Other Role Models Lee Evans © 2014 Add+up www. addup. co. uk

Other Role Models Billy Connolly © 2014 Add+up www. addup. co. uk Other Role Models Billy Connolly © 2014 Add+up www. addup. co. uk

Other Role Models Harvey Chahal © 2014 Add+up Matthew Sarll www. addup. co. uk Other Role Models Harvey Chahal © 2014 Add+up Matthew Sarll www. addup. co. uk

Other Role Models Martin Kelly Dominic Marsh © 2014 Add+up www. addup. co. uk Other Role Models Martin Kelly Dominic Marsh © 2014 Add+up www. addup. co. uk

Back to the normal? So what’s beginning Parent ing ual Man © 2014 Add+up Back to the normal? So what’s beginning Parent ing ual Man © 2014 Add+up www. addup. co. uk

Is this family experience backed up by research? • ‘ADHD is associated with a Is this family experience backed up by research? • ‘ADHD is associated with a substantial burden on carers’ (Cadman T et al 2012) YES • ‘Parents experience depression anxiety and stress’ (Cusson A et al 2013, Pimental M. J et al 2011) YES • ‘Parents carers may feel stigmatised by social groups’ (Davis CC et al, 2012) YES • ‘There is increased family conflict and poor family cohesion’ (Beiderman J et al 1996) YES • Effects on social functioning may impact personal relationships with partners’ (Beiderman J et al 2006) YES • ‘Children with ADHD may have a higher frequency of behavioural and conduct problems that children without ADHD, indicating the wider social implications of ADHD’ (Bagwell CL et al 2001) YES

 • ‘Adolescents with a history of ADHD tend to experience greater peer rejection, • ‘Adolescents with a history of ADHD tend to experience greater peer rejection, have fewer close friendships’ ( Kessler RC et al 2006) YES • ‘They are more likely to be bullied than their peers’ ( Holmberg K et al 2008) YES • ‘These effects are found to be greater in girls with inattentive type ( Elkins IJ et al 2011) with perceived stigmatisation causing negative consequences, potentially contributing to symptoms such as anxiety, social stress and depression’ ( Kellson I et al 2010). YES • ‘In general ADHD has been associated with low levels of self esteem and suicidal thoughts ( Klasson AF et al 2004) YES

What should we be doing and why are we not doing it ? What should we be doing and why are we not doing it ?

What needs to happen? • • • ADHD needs to be raised up the What needs to happen? • • • ADHD needs to be raised up the local and national policy agenda. Informed awareness needs to improve dramatically across all areas. Specialist training to inter alia schools, GPs Social care, Police ‘See beyond the behaviour’ Key workers who really believe in the child Improve access to early and accurate diagnosis with sensitivity to co existing conditions. Cost of ADHD studies on families and communities need to be extended. Currently only six in Europe Establish and implement proven intervention programmes across all areas as part of multi modal treatment package Manage informed transition Embed multi disciplinary approach ( NICE Guidance EHCP, CAF, TAC) Value, encourage and support allied parties, notably the voluntary and independent sector as part of a positive intervention team

The UK ADHD Partnership is working hard to address these actions at a national The UK ADHD Partnership is working hard to address these actions at a national and international level. Combining the voices of parents and young people at a local level through joint working between voluntary services and local authority can and does make a significant difference. Thank you We believe we can, and do, make a difference.

Annual cost for each category per year in Euros Study Country Cost person with Annual cost for each category per year in Euros Study Country Cost person with ADHD Healthcare de Ridder A, De Graeve D 2006* Belgium 1289 50 - - - Hakkaart-van Roijen L et al 2007** The Netherlands 2134 - - 658 1, 798 Schoffski O et al 2008*** Germany 716 Wehmeler PM et al 2009**** Germany 812 Myren KJ et al 2010****** Sweden 1, 960 Telford C et al 2012******* UK 1, 753 5, 559 37 - - Annual cost in euros Cost person with ADHD Education Cost person with ADHD social services Cost per family member Healthcare Cost per family member - lost productivity