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Washington Group on Disability Measurement 1° Meeting - 2002 February 18 - 21 Comparability Washington Group on Disability Measurement 1° Meeting - 2002 February 18 - 21 Comparability of Cross-National Disability Measures INFOMATION NEEDS and I. C. F. Italian experience ISTAT Elena De Palma Roberta Crialesi [email protected] it [email protected] it

Social Changes and information needs ISTAT • Policy and social context in Italy • Social Changes and information needs ISTAT • Policy and social context in Italy • health and social reforms • cultural transformation • national Law (L. 104) • Medical model versus Social model • integration of indivual and social factotrs • integration of policies and inteventions • mobilizing all resources • ISTAT and data on disability • Administrative data sources • “Health Conditions and Access to Health Services”. • “Aspects of daily life” • “Families, Social subjects and condition of childhood • re-evaluation of available information sources • integration of different data sources

Project: “Information System on Disability” Project: “Information System on Disability”

ISTAT I. S. on Disability: goals and users Implement a coordinated and integrated statistcal ISTAT I. S. on Disability: goals and users Implement a coordinated and integrated statistcal database Information tool to orient social integration policies for persons with disabilities Main data users: Policy-makers Researchers Associations Citizens

ISTAT I. S. on Disability: activities Steps for implementation of a coordinated and integrated ISTAT I. S. on Disability: activities Steps for implementation of a coordinated and integrated statistical database: Ø Analysis of policies Ø Set up focus group comprised of representatives from the various types of data user Ø Identification of principle thematic areas Ø Analysis of the most relevant experiences Ø Selection of data sources Ø Selection of main indicators Ø Planning of data interrogation system architecture

ISTAT I. S. on Disability: problems Problems faced: Ø Lack of data sources covering ISTAT I. S. on Disability: problems Problems faced: Ø Lack of data sources covering all aspects Ø Lack of available and comparable data Ø Lack of an inter-institutional network

I. S. on Disability: ISTAT products and intermediate tools Products: Ø Ø Data ware-house I. S. on Disability: ISTAT products and intermediate tools Products: Ø Ø Data ware-house Indicators system Metadata system Website: www. handicapincifre. it Intermediate tools: Ø Ø Meta-survey on data sources Survey on handicap certification system In-depth research of the needs of disabled persons and their families Information gathering on application of the national law at regional level for the Parliamentary Annual Report

ISTAT I. S. on Disability: Main themes Households Social life Education and scholastic integration ISTAT I. S. on Disability: Main themes Households Social life Education and scholastic integration Health and assistance Themes Work and employment Accidents Transport Spending on monetary benefits Recipients of monetary benefits

ISTAT General model of components ICF 2001 Health Condition (disorder/disease) Body Functions & Structures ISTAT General model of components ICF 2001 Health Condition (disorder/disease) Body Functions & Structures Activities Environmental Factors Participation Personal Factors

ISTAT Relationship with ICF One level ICF I. S. on Disabilities Activities and participation ISTAT Relationship with ICF One level ICF I. S. on Disabilities Activities and participation • • Difficulties with communication, mobility, self-care Chapter 8 Major life areas: Education Work and employment Economic life • • • Education and scholastic integration Work and employment Recipients of monetary benefits • • Social life Chapter 3 Communication Chapter 4 Mobility Chapter 5 Self-care • Chapter 9 Community, social and civic life Environmental factors • Chapter 3 Support and Relationship • Families and networks • Chapter 5 Services, Systems and Policies • • • Health and assistance Accidents Transport Spending on monetary benefits Education and scholastic integration

ISTAT Euro Disability Data n. 2 Project: “Indicators on Integration of Disabled Persons into ISTAT Euro Disability Data n. 2 Project: “Indicators on Integration of Disabled Persons into Social Life” Istat - National Institute of Statistics- Italy

Indicators on Integration of Disabled ISTAT Persons into Social Life Goals of the Project Indicators on Integration of Disabled ISTAT Persons into Social Life Goals of the Project Ø To identify a short set of indicators useful for informing the policy-makers on the status of the integration of disabled persons Ø To monitor the efficacy of integration policies directed persons with disabilities Ø To allow policy-makers to plan new intervention strategies

Indicators on Integration of Disabled ISTAT Persons into Social Life Indicators Core Indicators Precondition Indicators on Integration of Disabled ISTAT Persons into Social Life Indicators Core Indicators Precondition dimension Target Areas dimension Health promotion MOBILITY AND ACCESSIBILITY EDUCATION secondly EMPLOYMENT Social protection SOCIAL PARTICIPATION

Indicators on Integration of Disabled ISTAT Persons into Social Life: main problems The project Indicators on Integration of Disabled ISTAT Persons into Social Life: main problems The project has emphsized that: Ø ICF is not operative everywhere from a statistical viewpoint Ø To evaluate the integration of disabled persons in society is necessary to utilize data from different sources Ø Data sources are not available for all topics in all countries Ø Available Data are not always comparable