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THE CHALLENGENGES OF COLLECTING DISABILITY STATISITICS IN A LARGE SCALE EXERCISE, IN UGANDA by THE CHALLENGENGES OF COLLECTING DISABILITY STATISITICS IN A LARGE SCALE EXERCISE, IN UGANDA by Helen Nviiri Uganda Bureau of Statistics

Introduction Censuses have remained the largest sources of Demographic & Socio economic data in Introduction Censuses have remained the largest sources of Demographic & Socio economic data in Uganda (1911, 1921, 1931, 1948, 1959, 1969, 1980, 1991, 2002) Other sources include § Surveys § Administrative records

Existing Policies for Collecting Disability Data § The 1998 Statistics Act § The Draft Existing Policies for Collecting Disability Data § The 1998 Statistics Act § The Draft Disability Policy

Existing Sources of Large Scale Disability Data § The 1991 Population and Housing Census Existing Sources of Large Scale Disability Data § The 1991 Population and Housing Census § The 2002 Population and Housing Census § The 2004 Northern Uganda Baseline Survey § The 2005/6 Uganda National Household Survey § The Annual School Census - by Min of Education § The proposed 2006 Uganda DHS

Existing Sources of Administrative Disability Data § The Health Management Information system § The Existing Sources of Administrative Disability Data § The Health Management Information system § The Pilot Disability MIS - Tororo District, Eastern Uganda

Existing Programs to address the concerns of PWD’s The draft Disability Policy The CBR Existing Programs to address the concerns of PWD’s The draft Disability Policy The CBR Programme NGO’s § Uganda society for the deaf § COMBRA § The National OVC Strategic Framework § etc § § §

What are the challenges? Definitional Problems § The definitions and concepts used to collect What are the challenges? Definitional Problems § The definitions and concepts used to collect disability data § Lack of harmonised concepts § The reference period for the disability type may not be taken into consideration

Challenges cont…. Methodological/Coverage Issues § In censuses, do we cover all institutions, households, and Challenges cont…. Methodological/Coverage Issues § In censuses, do we cover all institutions, households, and hotels? § In household surveys, do we cover the institutions, refugee camps or Internally Displaced People’s camps (IDP’s)? § Are administrative records nationally representative?

Challenges cont…. Training of Field Staff § Unlike large-scale surveys, for censuses, a large Challenges cont…. Training of Field Staff § Unlike large-scale surveys, for censuses, a large number of interviewers is required (about 35, 000 - the 2002 census) § Training is usually conducted at 3 levels § Trainers may lack the capacity for special needs training – team composition § At all training levels, Special Needs Trainers are required which is not the case

Challenges cont…. Type of respondent § In censuses and surveys, all questions target the Challenges cont…. Type of respondent § In censuses and surveys, all questions target the Household Head § Important though for children especially those aged less than 10 yrs § What happens in case institutional/hotel population, especially those institutions for PWD’s – are guidelines given?

Challenges cont…. Field Testing § No field testing is done during the field data Challenges cont…. Field Testing § No field testing is done during the field data collection. We take the responses as given by the respondent § It is important especially for young children, those aged less than 10 years § This requires specially trained personnel and maybe time consuming § It is proved to be expensive

Challenges cont…. Field Supervision § The large number of enumerators complicates the supervision of Challenges cont…. Field Supervision § The large number of enumerators complicates the supervision of data collection § This increases the demand for supervisors and technical staff (disability assessment)

Challenges cont…. Field Supervision § In case of HH Surveys, the problems maybe limited, Challenges cont…. Field Supervision § In case of HH Surveys, the problems maybe limited, if the number of teams is small and when the teams are centrally controlled

Conclusions & Recommendations § Include NGO’s CBO’s for the PWDs at all levels/stages of Conclusions & Recommendations § Include NGO’s CBO’s for the PWDs at all levels/stages of the Census/survey. § Decide on the levels of analysis before the data is collected. Should the hotel census questionnaire include disability questions?

THE END THANK YOU THE END THANK YOU