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THE CHALLENGENGES OF COLLECTING DISABILITY STATISITICS IN A LARGE SCALE EXERCISE, IN UGANDA by Helen Nviiri Uganda Bureau of Statistics
Introduction Censuses have remained the largest sources of Demographic & Socio economic data in Uganda (1911, 1921, 1931, 1948, 1959, 1969, 1980, 1991, 2002) Other sources include § Surveys § Administrative records
Existing Policies for Collecting Disability Data § The 1998 Statistics Act § The Draft Disability Policy
Existing Sources of Large Scale Disability Data § The 1991 Population and Housing Census § The 2002 Population and Housing Census § The 2004 Northern Uganda Baseline Survey § The 2005/6 Uganda National Household Survey § The Annual School Census - by Min of Education § The proposed 2006 Uganda DHS
Existing Sources of Administrative Disability Data § The Health Management Information system § The Pilot Disability MIS - Tororo District, Eastern Uganda
Existing Programs to address the concerns of PWD’s The draft Disability Policy The CBR Programme NGO’s § Uganda society for the deaf § COMBRA § The National OVC Strategic Framework § etc § § §
What are the challenges? Definitional Problems § The definitions and concepts used to collect disability data § Lack of harmonised concepts § The reference period for the disability type may not be taken into consideration
Challenges cont…. Methodological/Coverage Issues § In censuses, do we cover all institutions, households, and hotels? § In household surveys, do we cover the institutions, refugee camps or Internally Displaced People’s camps (IDP’s)? § Are administrative records nationally representative?
Challenges cont…. Training of Field Staff § Unlike large-scale surveys, for censuses, a large number of interviewers is required (about 35, 000 - the 2002 census) § Training is usually conducted at 3 levels § Trainers may lack the capacity for special needs training – team composition § At all training levels, Special Needs Trainers are required which is not the case
Challenges cont…. Type of respondent § In censuses and surveys, all questions target the Household Head § Important though for children especially those aged less than 10 yrs § What happens in case institutional/hotel population, especially those institutions for PWD’s – are guidelines given?
Challenges cont…. Field Testing § No field testing is done during the field data collection. We take the responses as given by the respondent § It is important especially for young children, those aged less than 10 years § This requires specially trained personnel and maybe time consuming § It is proved to be expensive
Challenges cont…. Field Supervision § The large number of enumerators complicates the supervision of data collection § This increases the demand for supervisors and technical staff (disability assessment)
Challenges cont…. Field Supervision § In case of HH Surveys, the problems maybe limited, if the number of teams is small and when the teams are centrally controlled
Conclusions & Recommendations § Include NGO’s CBO’s for the PWDs at all levels/stages of the Census/survey. § Decide on the levels of analysis before the data is collected. Should the hotel census questionnaire include disability questions?
THE END THANK YOU