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Arthritis Foundation Arthritis Ambassador Briefing Dial In: 1 -866 -487 -9460 Conference Code: # 931 709 2991 Materials available for download at http: //www. arthritis. org/ambassador_assignment. php November 11, 2014 3 PM Eastern
• • • Agenda Welcome/Introduction Laura Keivel, Manager of Grassroots Advocacy Sandie Preiss, Vice President, Advocacy and Access 2014 Election Review David Wasserman, The Cook Political Report What’s Next in Federal Priorities? Anna Hyde, Director of Health Policy and Federal Affairs What’s Happening in the States? Mark Guimond, Director of State Government Relations November / December Ambassador Assignment Laura Keivel, Manager of Grassroots Advocacy Ambassador Year End Review Laura Keivel, Manager of Grassroots Advocacy Summit Laura Keivel, Manager of Grassroots Advocacy Q&A
Welcome! Happy Veteran’s Day • Final Ambassador briefing of 2014 • Laura Keivel, Grassroots Advocacy Manager position
2014 Election Review David Wasserman House Editor The Cook Political Report
What’s Next on the Federal Landscape? Anna Hyde Director, Health Policy and Federal Affairs
What’s Next on the Federal Landscape? • Republicans now hold a majority of both the House and Senate, with XX House seats and XX Senate seats. • There will be XX new Representatives and XX new Senators in the 114 th Congress. • 10 Members of the Arthritis Caucus will not be coming back in the 114 th Congress. • 21 co-sponsors of HR 460 will not be coming back in the 114 th Congress. • Bottom line: We have a lot of work to do to educate the new Members of Congress about our issues, increase membership of the Caucus, and increase support for HR 460.
Issues for the Lame Duck • While it is unlikely any major legislation will get passed during the lame duck, Congress will have to pass an appropriations bill by Dec 11 to keep the government funded. – Anna Fix (Hist. nothing happens in lame duck) • This could be a short-term continuing resolution, or this could be an omnibus bill that combines multiple spending bills into one. • Our main issue: the Senate bill zeroes out the CDC Arthritis Program; a CR would protect this funding, an omnibus might put it in jeopardy. • We will be watching this closely and mobilizing our Ambassadors as needed.
Gearing Up for 2015 • Re-introducing the Patients’ Access to Treatment Act: – Continuing our op-ed strategy (we got at least one placed over October recess…way to go Ambassadors!). – Working with the Coalition for Accessible Treatments to increase House co-sponsors and get a Senate companion bill introduced. – Planning a big, splashy briefing upon re-introduction of the bill.
New Opportunities at FDA • The FDA is seeking comments on ways to include the patient perspective in the drug development process. • We want to hear from you! – Have you engaged with the FDA before? If so, what was your experience like? – Do you have any ideas about how the FDA should include you in their work? – What would be the best way for the FDA to communicate with you about the work they are doing? • There will also be upcoming opportunities to serve as a patient representative on FDA Advisory Councils. Stay tuned for more information!
State Legislation Update Mark Guimond Director of State Legislative Affairs
2015 State Legislative Priorities • Out-of-Pocket Costs • Biosimilars – FDA meeting (Anna!) • Step Therapy • Formulary Transparency • Prior Authorization
Recent 2014 Major Ambassador Policy Engagements • • CA S. 1052 – Formulary Transparency MD H. 761 - Out of Pocket Cap LA S. 165 – Out of Pocket Cap Iowa Insurance Commissioner Idaho Board of Pharmacy State AIM Coalition Committee on Transparency
New AF Position Statements
State Legislation Update We need your personal stories! • • Are you having issues with step therapy? Are you personally experiencing specialty tier issues? Have you heard of biosimilars issues in your state? Any other issues we should know about? Let us know! Contact Mark Guimond at [email protected] org
November / December Assignment Invite your member of Congress and Senators to Arthritis 101 What is Arthritis 101? A briefing to educate Congress about arthritis and our legislative priorities Why? Congress has many misconceptions about arthritis and we want to clear them up! 15
Arthritis 101 Speakers • Dr. Jan Wyatt, Former Arthritis Foundation Board Member and Patient • Margo Diehl, Juvenile Arthritis patient • Dr. Harry Gewanter, pediatric rheumatologist, Pediatric and Adolescent Health Partners • Dr. Randeep Kahlon (invited), orthopedic surgeon, First State Orthopaedics • Devon Seibert, Legislative Director, Rep. David Mc. Kinley • Erin Wise, Health Legislative Assistant, Rep. Anna Eshoo 16
Assignment Resources • A manual with an invitations and scripts is available on the Ambassador website • Polite persistence is key in inviting! • It’s a busy time but make sure the staff knows this briefing is important 17
Ambassador Assignment Resources • Report your activity in the reporting center ONLY when it is complete! • Need assistance with the reporting center? Check out our guide on the Ambassador website! 18
Stay Tuned for January’s Exciting Activity! You WON’T want to miss this! January 14, 2015 3: 00 PM Eastern Welcome Back Congress initiative A push for Patients’ Access to Treatment’s Act reintroduction and educating Congress about arthritis Ambassador Commitment forms will be available in mid-December and due by the January 31 19
Ambassador Year End Wrap Up • Over 40 offices visited during 2014 August recess with 3 new Congressional Arthritis Caucus members added • 940 E-Advocates recruited across the country in April 2014 by Ambassadors • 23 Co-sponsors added to H. R. 460 as a result of the Ambassadors • 15 Co-sponsors added to H. R. 1827 as a result of the Ambassadors • Over 5, 523 letters sent to Congressional offices by Ambassadors and advocates in 2014 (HR 460 and CDMRP Funding) • Over 100 new Ambassadors joined the program since May 2014 • Over 362 Ambassador assignments completed and over 200 bonus assignments completed! 20
Save the Date! 2015 Advocacy Summit March 23 -24 Doubletree Hotel Crystal City 21
Questions? Contact Laura Keivel Manager of Grassroots Advocacy [email protected] org 202 -887 -2913 22
Thank You! We appreciate all of your support and dedication! The next Ambassador call is January 14, 2015 3: 00 PM Eastern 23